sickel cell and beta thalasemia

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sickel cell and beta thalasemia
« on: May 11, 2017, 08:58:47 AM »
My son is suffering with sickle cell and beta thalasemia advised me what should I do?

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Offline BabyRiya

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Re: sickel cell and beta thalasemia
« Reply #1 on: May 12, 2017, 02:00:26 AM »
May be little more details would help like hbh age etc.  hydrauxia for sickle cells works for some.

Re: sickel cell and beta thalasemia
« Reply #2 on: May 12, 2017, 04:33:39 AM »
My son age is 19 months and Hb level 8.

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Offline BabyRiya

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Re: sickel cell and beta thalasemia
« Reply #3 on: May 12, 2017, 08:29:17 PM »
Did you do the genotype sequencing electrophoresis?  What does it say?

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Offline Andy Battaglia

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Re: sickel cell and beta thalasemia
« Reply #4 on: May 14, 2017, 04:17:45 PM »
The child is beta+ sickle cell. It's difficult to predict the future, but in most cases, it means transfusions will not be regularly required, but precautions against sickling crisis should be taken, such as avoiding high altitudes.
Andy

All we are saying is give thals a chance.

Re: sickel cell and beta thalasemia
« Reply #5 on: May 16, 2017, 05:53:17 AM »
Thanks to quick reply me again thanks God bless You always.
Dear I want to ask which complication in future about my son decease? 

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Offline Andy Battaglia

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Re: sickel cell and beta thalasemia
« Reply #6 on: May 19, 2017, 02:32:44 AM »
The biggest danger is the sickling crisis, when the sickle shaped cells cause blood vessels to be blocked temporarily. I suggest that daily vitamin E be given to the child to help prevent this.
Andy

All we are saying is give thals a chance.

Re: sickel cell and beta thalasemia
« Reply #7 on: May 19, 2017, 03:43:38 AM »
Dear plz tell me beta thalaseemia can be dangerous? 

Re: sickel cell and beta thalasemia
« Reply #8 on: May 19, 2017, 04:04:39 AM »
HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year  use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?

Dear Andy Please reply me
« Reply #9 on: May 26, 2017, 04:59:45 AM »
HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year  use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?

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Offline Andy Battaglia

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Re: sickel cell and beta thalasemia
« Reply #10 on: May 26, 2017, 08:20:02 PM »
Mubeen,

Beta thalassemia is dangerous when two beta thal genes are present.

I would not suggest stopping hydroxyurea unless your doctor says to stop.
Andy

All we are saying is give thals a chance.

Re: sickel cell and beta thalasemia
« Reply #11 on: June 13, 2017, 03:10:56 AM »
Dear above reports shows One beta thal present or two beta thal present?

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Offline Andy Battaglia

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Re: sickel cell and beta thalasemia
« Reply #12 on: June 15, 2017, 04:43:44 PM »
It couldn't be two beta thal genes. One beta globin gene is beta thal and the other is sickle cell.
Andy

All we are saying is give thals a chance.

Re: sickel cell and beta thalasemia
« Reply #13 on: June 16, 2017, 04:00:01 AM »
Thanks dear

 

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