Hb e/beta thalassemia is major or intermediate? Please help

  • 6 Replies
  • 5544 Views
Hi i am new here this is my first post .i am 19 years old.I have Hb e/beta thalassemia. My hemoglobin is close to 5-9. currently 6.1. I have never taken blood transfusion. My only problem is that my weight is not gain. my weight is only 39kg & I'm very skinny. help me please.

1)I have thalassemia major or intermediate?
2) How to I gain my weight?
3)Will the Enlarge spleen be any problem?
4)Can need transfusion in future?

(sorry for my bad English)

*

Offline Andy Battaglia

  • *****
  • 8738
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #1 on: May 15, 2018, 02:03:18 AM »
You are thal intermedia and unless you can raise your hemoglobin level, you will need transfusion. Since you are in India, I would suggest you contact Dr Vijay Ramanan and ask about his novel therapy, which is yielding good results in many people similar to yourself. In addition to raising the Hb so patients don't have to transfuse, his therapy is showing good results in patient growth, as well. Go to this link to find contact information, https://www.vijayramanan.com/
Andy

All we are saying is give thals a chance.

Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #2 on: May 17, 2018, 05:24:13 AM »
Dear Andy please suggest any Doctor in Pakistan (Lahore) for the same problem of my son age two year

*

Offline Andy Battaglia

  • *****
  • 8738
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #3 on: June 03, 2018, 09:49:49 PM »
Mubeen,

I don't know any doctors in Pakistan. Try contacting Ayesha Mehmood for advice. you'll find her on Facebook.
Andy

All we are saying is give thals a chance.

Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #4 on: June 12, 2018, 03:18:36 AM »
Dear Andy I share on facebok to Mrs. Aysha but she also don't know that what is sickle cell and beta plus patient, so your opinion is much important for us. My son is two and half year old and his weight is only 10 kg from last year

*

Offline Andy Battaglia

  • *****
  • 8738
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #5 on: June 18, 2018, 09:16:41 PM »
Sickle cell beta thal is treated like thalassemia, so any doctor who treats thalassemia can treat it. Again, there is no way for me to give you the names of doctors in Pakistan.
Andy

All we are saying is give thals a chance.

Re: Hb e/beta thalassemia is major or intermediate? Please help
« Reply #6 on: June 19, 2018, 04:03:09 AM »
Again Thanks dear Andy

 

SMF spam blocked by CleanTalk