Etavopivat/ FT-4202

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Etavopivat/ FT-4202
« on: January 03, 2023, 09:43:59 PM »
Doctors here at Oakland Children's Hospital are wanting to enroll child for Etavopivat clinical trials to increase Hg by 1.5 points, hence increasing the gap between transfusions.

It's  a clinical trial, more trips to hospital, and more MRI scans needed, so thinking about it.

Does anyone have any experience with it or inputs?



Offline Andy Battaglia

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Re: Etavopivat/ FT-4202
« Reply #1 on: January 07, 2023, 08:40:09 PM »
Have the doctors given you any information about how well it is working in patients already in the trial? I was also curious whether or not Luspatercept, Reblozyl has been tried yet.

All we are saying is give thals a chance.


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