living in the desert with thal

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Offline Zaini

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Re: living in the desert with thal
« Reply #15 on: May 18, 2010, 07:49:16 AM »
And i don't even need to do any work to feel over heated,i sweat profusely,even while sitting beneath a fan,day and night,i often wake up at night drenched in sweat,and now a days this weather of 95 degrees is killing me.
^*^Xaini^*^

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Offline Moik

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Re: living in the desert with thal
« Reply #16 on: May 24, 2010, 04:18:21 PM »
If the heat is causing discomfort and anxiety like symptoms
another thing you could do is put a cool wet cloth on the back of your neck (near your vagus nerve)
this can help slow your heart and stabalize o² and co²

doc suggested it for ME and it seems to help a bit

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Offline Dori

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Re: living in the desert with thal
« Reply #17 on: May 24, 2010, 07:18:37 PM »
Exactly, I used it too during my bicycle vacations. Though it looks a little weird. I am sorry you experiece' things like that Zaini.
Today we had our first 25C day and I have all my windows open to welcome fresh cold air. :)
I hope this thing does the trick for you.

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Offline Prets

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Re: living in the desert with thal
« Reply #18 on: May 26, 2010, 03:35:39 PM »
Yes I do that too, but on my forehead and sometimes my feet (if i'm home).

I also have a gel ice pack at home, that doesnt turn into hard ice - so it feels comfortable cool.

But going out is definitely a problem, because the hot and cold together can cause problems. Regular temperature wet cloth is a very good idea of course. :-)
Symptomatic Beta Thal Minor.

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Offline umar_farooq_x

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Re: living in the desert with thal
« Reply #19 on: May 26, 2010, 04:28:27 PM »
its nothing
today in Karachi :rotfl the temperature was 37 degree Celsiuses 

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Offline Moik

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Re: living in the desert with thal
« Reply #20 on: May 26, 2010, 05:25:09 PM »
about 85f then the heat index around 90f here today...but yard has to be mowed its going to rain..and yard takes forever to dry

HERE GOES NOTHING!!  :dunno






 :wink

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Offline nice friend

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Re: living in the desert with thal
« Reply #21 on: May 26, 2010, 07:17:57 PM »
hi ya all,
it was 48c here in Faisalabad ...  an extremely hot day :tantrum  :whew  ...


Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Moik

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Re: living in the desert with thal
« Reply #22 on: May 26, 2010, 07:21:10 PM »
Good grief!! Hopefully it wasnt very humid as well

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Offline nice friend

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Re: living in the desert with thal
« Reply #23 on: May 26, 2010, 07:27:37 PM »
Moik,
it wasn't humid .. just calm but hot winds .. interesting thing  is, the kids was  playing in ground infront of my house at  5-pm ...  :D ...
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Dharmesh

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Re: living in the desert with thal
« Reply #24 on: August 31, 2012, 06:52:15 AM »
Confused, i m confused,

As said in posts above that thal remains hot makes me confused.

I remains cold during most part of the day, even right now my chest, abdomen and upper arm areas are cold.

I asked once my pediatrician about this coldness and even with high sugar level(at that time) my lower arm was very cold but he was unable to answer and said very frankly "Don't Know why it is happening?

I t i s Confusing
« Last Edit: August 31, 2012, 09:09:41 AM by HANUMANT AASHRIT »
Start listening your body, it always gives signs

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Offline Pratik

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Re: living in the desert with thal
« Reply #25 on: August 31, 2012, 07:02:33 AM »
Confused, i m confused,

As said in posts above that thal remains hot makes me confused.

I remains cold during most part of the day, even right now my chest, abdomen and upper arm areas are cold.

I asked once my pediatrician about this coldness and even with high sugar level(at that time) my lower arm was very cold.

I t i s Confusing
During hypoglycemia my body turns cold and numb. I experience low sugar levels frequently.
Every child is special.

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Offline Dharmesh

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Re: living in the desert with thal
« Reply #26 on: August 31, 2012, 09:13:04 AM »
It is in addition to "HYPO" time.
I always take one or two unit less than what is prescribed because doc will not come to rescue after prescription and my goal is <200 level.
Due to Hypo body suffer more weakness so it is better to avoid hypo and to have mild hyperglycemia.
Start listening your body, it always gives signs

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Offline Andy Battaglia

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Re: living in the desert with thal
« Reply #27 on: August 31, 2012, 01:33:15 PM »
Dharmesh,

Is your thyroid hypo? It is common among thals and will also cause one to feel cold easily, as is the case with me.


The reason that thal usually causes people to feel hotter is the heat released by the ongoing hemolysis.
Andy

All we are saying is give thals a chance.

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Offline Pratik

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Re: living in the desert with thal
« Reply #28 on: August 31, 2012, 02:26:27 PM »
It is in addition to "HYPO" time.
I always take one or two unit less than what is prescribed because doc will not come to rescue after prescription and my goal is <200 level.
Due to Hypo body suffer more weakness so it is better to avoid hypo and to have mild hyperglycemia.
Neither I. I decide my own doses, haha. But sometimes I couldn't save it from happening and it turns occurs unexpectedly.

My goal is also less than 200 but my levels decreases also rapidly and increases at the same pace as well. Though I got my dose reduced a bit since last few days.
Every child is special.

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Offline Dharmesh

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Re: living in the desert with thal
« Reply #29 on: September 01, 2012, 10:41:22 AM »
Dharmesh,

Is your thyroid hypo? It is common among thals and will also cause one to feel cold easily, as is the case with me.


The reason that thal usually causes people to feel hotter is the heat released by the ongoing hemolysis.
Oh God Please, If you live on earth, please don't gift me Thyroid,
I know You believe in me but keep me away from more consequences.

Dear Andy i was talking about Sugar Hypo due to Diabetes i.e. Hypoglycemia.

My favorite doc. has suggested me to do Thyroid tests bi-annually.
This is the latest one done on 16.08.12
 
T3 = 1.243ng/ml (0.56-1.88)
T4 = 49.8 mmol/l (59-153)
TSH = 2.748  µIU/ml (Adult 0.4-4.0)
Even i shown this report to Endo. but he didn't comment.

Previous TSH on 21.02.12
TSH  = 1.66 mU/L (0.3-5.5)
Start listening your body, it always gives signs

 

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