Introduction

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Offline poo gill

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Introduction
« on: February 22, 2006, 10:30:09 AM »
Hi All

I have been with the old Thal patient's & friends for almost 3 years now. Since the day I got to know of thal patients and friends my life started looking up which had suddenly come crumbing down in Oct 2002. 11 oct 2002 was the day when my 2.5 years old son was diagnosed with Thal Intermedia. He was conceived and born in S'pore with the state of the art medaical facilities, tests(even thal test), in S'pore. However as God would have it, I was a silent carrier so my hubby was not tested and my son came in this world on Jan 27, 2000 being a thal intermedia. But we did not know till he turned 2.5 and one day  he was sick with flu, Doc's here gave him some amoxycyclin, which made his eyes swell. I ran from pillar to post in S'pore but nobody could tell me why his eyes were swollen post illness. At the same time I was quite perturbed abt his very dark urine, took the sample to 2-3 general physians in S'pore but same reply, everything is normal.

It was just sheer luck that i went to india for biz  and took my son along with me, one look at him and my mom  shreiked  - he is really sick. Our family doctor ran some normal routine blood test in India and reality dawned. Thankfully I was in Chandigarh, my home town and I was straight sent to PGI, my son was taken under Dr Marwaha's care - super specialist in Haemotology. He has been on hydro oxy urea since with one transfusion. Things have stabilized.

Initally i used to ask only one question WHY me???? but then i discovered thal freinds and patient forum and realized that this is not the end of the road infact it is just a hurdle and God has given me this hurdle knowing that my son,  me and my family can handle it together. I am convinced that my son is a Miracle baby, he has always fought against all odds.

I can confidently say that encountring Thal has made me a better human being.

Love & good health to all of you.

god bless

Poo gill

 
"We are like angels with just one wing. We can only fly by embracing each other." 

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Offline Danielle

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Re: Introduction
« Reply #1 on: February 22, 2006, 10:44:02 PM »
Hi Poo!  I'm so glad to see you found your way here!   :biggrin

I'm also glad to hear that your son was properly diagnosed and that you have things under control.  You have friends here that will help if you have any questions or problems that you want to discuss.  We know what you're dealing with, one way or another, and sometimes that helps when you need a shoulder to lean on.   :hug

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Offline poo gill

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Re: Introduction
« Reply #2 on: February 23, 2006, 05:09:58 AM »
Thanks Danielle

Indeed this thal forum is a shoulder which has given me tremendous support both emotionaly and in terms of increasing my knowledge abt Thal as a disorder. Hope I can be of assistance to the new members here in anyway possible.

luv
"We are like angels with just one wing. We can only fly by embracing each other." 

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Offline §ãJ¡Ð ساجد

  • Beta Thal Major
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  • 1991
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  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: Introduction
« Reply #3 on: February 23, 2006, 07:07:19 AM »
Hi,

   Don't be sad if you have a little worries in life. You should always look on the bright side of life! Always be positive! (Hey, wait a minute! that's my blood gruop, B +ve  :biggrin) No wonder I always say "The glass is "HALF FULL not HALF EMPTY")

   Anyway, I notice that you are from Singapore! Haven't you ever heard that Singapore Genreal Hospital (a.k.a SGH) were the pioneers of Cord Blood Tranplant to treat Thalassemia. They have now exceled so much that their result of Cord Blood is impressive compared to any other Hospital or Bone Marrow transplat. I've been emailing them for weeks but they are not taking my case seriuosly as I am not a local. You on the other hand might get a better response being a local! Try to contact them to help you out!

Take care and be Happy!
اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
Web Site

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Offline Eponine

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Re: Introduction
« Reply #4 on: April 02, 2006, 04:01:03 PM »

 Haven't you ever heard that Singapore Genreal Hospital (a.k.a SGH) were the pioneers of Cord Blood Tranplant to treat Thalassemia. They have now exceled so much that their result of Cord Blood is impressive compared to any other Hospital or Bone Marrow transplat. I've been emailing them for weeks but they are not taking my case seriuosly as I am not a local. You on the other hand might get a better response being a local! Try to contact them to help you out!


Hmmm... am from Singapore, but have not heard much about them using the cord blood for thals. Did u get a response finally from SGH? There are only about 70 thals among the population of 4mil here, so really, thals are prob the last thing on their mind...

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Offline §ãJ¡Ð ساجد

  • Beta Thal Major
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  • 1991
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  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: Introduction
« Reply #5 on: April 03, 2006, 11:09:47 AM »
Hmmm... am from Singapore, but have not heard much about them using the cord blood for thals. Did u get a response finally from SGH? There are only about 70 thals among the population of 4mil here, so really, thals are prob the last thing on their mind...

Yes I got the replay and I've posted in the Working Towards a Cure Section. I also posted a link "Somewhere :-\" in the site that leads you to the news regarding Stem Cell project and I think that in their news of 2k1 they annunced about the SHG's milestone cure of Thal. Via Cord Blood!
اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
Web Site

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Offline Eponine

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Re: Introduction
« Reply #6 on: April 13, 2006, 04:32:04 PM »
ok. I will go check up more on it. I will start questioning. THanks!

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Offline §ãJ¡Ð ساجد

  • Beta Thal Major
  • *****
  • 1991
  • Gender: Male
  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: Introduction
« Reply #7 on: April 17, 2006, 07:48:33 AM »
ok. I will go check up more on it. I will start questioning. THanks!

Hi,
    I found that post, which I was talking about it. You can read it by clicking the link:
http://www.thalassemiapatientsandfriends.com/index.php?topic=117.msg579#msg579

Take care. Bye!
اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
Web Site

Re: Introduction
« Reply #8 on: April 17, 2006, 06:49:04 PM »
Hi Poo

I fully agree with you regarding this web site. its wounderful and very informative to all.
As a parent I am every day getting more confident about my daughter's future. I am certain by the time she grows up, medical science would have progresed and threre will better, easier cure for thal.

Good luck

 

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