Discussion Forums > Thalassemia Major
I feel i have reached the end of my road.....
Expecting#2:
Ambareen,
I am new to this message board and I have never spoke to you before but my heart goes out to you.
I don't know what it is like to lose a sibling and I am terrified that there will be a day when I have to find out. My 15 year old brother is living with type 1 diabetes and I was employeed with the American Diabetes Association for 2 years. If there are any questions you have about diabetes I have a lot of resources and Endocrine's that I ask questions of all the time for my family.
Diabetes can really mess with your hormones and could very well be a part of your depression. 280 is a very high bg to have for an extended period of time. Are you on an insulin therapy? What type of insulin are you using?
Andy mentioned that you may be able to reduce the steroids that you are using...steroid use can cause hyperglycemia so if you there is a possible way to reduce your steroid use you may be able to help bring down your blood glucose also.
I had to leave the American Diabetes Association for some of the same reasons you have had to move away from your involvement in the Thal Center. I found that I care so much about people with diabetes and I want so badly for them to be healthy and happy that I felt I could never get a good grip on all that needed to be done. Still being away has been just as hard!
I hope things get better for you and if there is anything I can do to help I would love to!
Manal:
Ambareen, i totally agree with Andy that inside you you don't want to give up and i am sure you won't too. Remember your brother and how he will be happy seeing you a strong person. From time to time all of us pass through those depression phases, but hope is the only thing that gets us back to track again and sometimes the many problems at atime defeat us,.. so i suggest you start with only one at a time. Start with changing the endocrinologist and see what he can offer to control the diabits . After this i am sure you will feel much better.
Reading your previous posts always gave me strength so please remember that knowing that your are fine and well is so imprtant to us all.
And truly from my heart Ambareen we are all much (with the severe complications any of us suffer) better than many people suffering from other diseases.
Ambareen, i believe that one's will can do miracles, am i right Ambareen????
Please know that we are all always here for you anytime
Much love to you
Manal
Zaini:
Ambareen,
Reading your post left me speechless,still i felt like i want to say something,though i am not sure what that something would be,i can't say that i understand your condition,coz i do understand it in words, but i am not really going through it,but believe me whenever i look at people like you,you grown up thals ,i feel hopeful for my daughter,bcoz i know that i always say that thal is not a fatal disease and it's a mnageable disorder and blah blah blah,but deep down i know, that if something will go wrong ,(GOD FORBID) i won't be able to reverse it,like everytime my daughter recieves her transfusion,i wonder if the blood is screened enough not to pass her any disease,she is getting her transfusions from the most authentic hospital in the city,but you can't fight fate,so what should i do? you tell me, help me here plz,should i stop doing everything which is currently with in my reach? should i consider my daughter a hopeless case? i don't think your answer would be yes to this question.
I know you've been through a lot,fighting for every day of your life must be tiresome,i can't even imagin your problems,but let me assure you,i am a mother of a thal patient,and you know what's special about parents,they always see,want to see everything for their kids in the positive perspective,they never loose hope,so just think about your parents,what would they feel if they'll know that you are loosing hope.
I am sure you must have heard that Hadith " Dua is a momin's weapon".I know it's hard to seek solace even in religion when you are depressed,but i've found that eventually it helps you.
You'll always be in my prayers,i request you not to loose hope.
ZAINI.
Kathy11:
Dear Ambareen, :hugfriend
Yes life can be hard and at times and we do feel that we can't cope anymore,because our pain is so much to bare,It is good that you are able to share your feelings with us ,that in it's own, is a way of copping.you are always welcome because we all hurt sometimes
Tomorrow is another day as long as you are breathing, dont lose hope.believe that there must be a better outcome for your already fragile health,
I am sad to hear that you are currently having a terrible time,we are all pulling together for you and that doesnt seem much but it has to be of some comfort to you.
best of luck my friend and may our prayers see you through your worries :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers.
with love from Kathy.
Andy Battaglia:
Ambareen, please look at this post at http://www.thalassemiapatientsandfriends.com/index.php?topic=1184.0 The study quoted in the post was done in the UAE.
If you are not getting adequate amounts of vitamin D your body cannot absorb enough calcium to maintain your bones. Vitamin D deficiency can also cause depression. If you are not already taking a high dose of vitamin D daily, show the study to your doctors and ask if they will prescribe high dose vitamin D2 for you.
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