Discussion Forums > Thalassemia Major

Ferritin level gone up

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Ambika:
Hi all
and happy new year :party

I wish all of you best of there health.

I want to ask regarding chelation . Ambika's ferritin level has gone to 375.15. She had got till now six transfusions . So  tell me what should we have to do now . She is now 10months old.


regards
Rupali

§ãJ¡Ð ساجد:
Hi Rupali,

Thanks for the wishes! :biggrin

Your baby is still too young to start chelation therapy. Normally it doesn't start till she is more than 2 years old and her S.F gets around 1500

Canadian_Family:
Hello,

Happy New Year to you too, no need to worry on ferritn at this point. I think the chelation therapy starts after 10-12 transfusions, so you got time and your child is very young.

Regards

Andy Battaglia:
Hi Rupali,

As the others have said it is too early to consider chelation. What you should be doing now is preparing for that day by comparing the chelators available to you, most likely desferal or kelfer, and which you will choose. You have plenty of time to talk to the doctor and decide which is right for your child.

mrtariqkhan:
oh goody, i was thinking to start this topic , my daughter is now almost 2 years old and has had around 17 transfusions. her ferritin is 979,  should i wait for it to get around 1500 or should i start iron chelation now.but i think she is going to give us a lot of trouble. how did any of the other parents did something anything to make it easier for the child to start the therapy???   can some one guide me what is the difference between defresal and kelfer any previous posts on this???  is the one better than the other???

Thanks
and regards

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