Discussion Forums > Thalassemia Major
FerriScan : Non-invasive measurement of liver iron concentration
sahil:
Andy,
My T2*reports were as follows:
Heart 31.38
Liver 9.55
Conclusion:
1- Absence of liver and myocardial iron loading.
2- Normal biventricular function. The ejection fraction is 63.2%
My latest Serum Ferritin is 317 ng/ml. I'm not on any chelation at the moment. Waiting for the S.Ferritin to reach 1000 ng/ml. Then I'll start with Asunra (Exjade) again.
I'm not in touch with Vikas. But will surely mail him or leave a message for him regarding the FerriScan.
\peace/
Zaini:
Whoa Sahil,
--- Quote from: sahil3101 on October 13, 2008, 11:11:13 AM ---
My latest Serum Ferritin is 317 ng/ml. I'm not on any chelation at the moment. Waiting for the S.Ferritin to reach 1000 ng/ml. Then I'll start with Asunra (Exjade) again.
--- End quote ---
You deserve a big hand :clapcheergirl :clapcheergirl :clapcheergirl :clapcheergirl :clapcheergirl :clapcheergirl :thumbs :thumbs :thumbs :thumbs :thumbs
Congrats,
Zaini.
sahil:
Thank You Zaini!! :smiley
All the credit goes to my parents for arranging everything for me. And my lovely doc, who's a gem of a person. He would always say to get my S.Ferritin below 500 ng/ml.
\peace/
sahil:
--- Quote from: Andy on October 13, 2008, 06:57:47 AM ---
One quick note. I had mentioned that ejection fraction is not a very accurate test and this was also verified at Singapore.
--- End quote ---
My T2* report had the ejection fraction thing, so is it inaccurate?
\peace/
Sharmin:
Andy,
Thank you for that information.
Sahil,
The ejection fraction is one measurement they take during an echo cardiogram or during the T2* - the results of ejection fraction measurement are 'interpreted' by the radiologist. It seems that there is a little discrepancy in the interpretation depending on who is measuring it. Your T2* test should be accurate regardless of the accuracy of the ejection fraction value (which is probably in the ball park of 63.2%).
Your test results look great! Doctors here have mentioned that 500 - 600 is the level of ferritin, at which Exjade should be re-introduced/started rather than waiting for your iron levels to go to 1000. At that point maybe you can start on a very low dose of Exjade. You can check with your doctor.
Congratulations on your values! They look great!
Sharmin
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