Discussion Forums > Thalassemia Major
Slow rate transfusion and warm antibody
Manal:
Hi Sharmin
--- Quote ---There are other methods, such as introducing an antibody against the particular antibody which is causing the problem, to the patients body to scavenge and eliminate the problem causing antibody
--- End quote ---
My mother has done the same, but she is a rhumatoid patient and you know this disease is all about antibodies attacking the joints. Any way she did this immune modulation drug where the doctor took her plasma and prepared a medicne that balances wth the antibodies in her system. Anyway, she feels a lot better now, the most important thing is that she stopped the methotrexate ( chemo pills that is used to hide all her painful symtoms) that she used to take since 2003. Until now she has no symptoms and she is off from the medicne.
I know that this maybe a different situation, but i think the concept of antibodies is the same
manal
Sharmin:
Thank you for letting me know about this Manal, I am also glad that your mother is feeling better :)
How long has it been since she went through this procedure? Has it affected her immune system in general?
I am glad to hear that she is off of the strong drugs and I hope she remains symptom free. I will give this some more consideration - if it works it will resolve all of our problems - and we'll be back to having only thalassemia (isn't that funny to say - I am hoping for the thalassemia the way it was monthly transfusions and nightly chelation, predicability aaahhhhh those were the days). All of this worrying can really take a toll, wondering what is going to happen each week.
Thanks again!!
Sharmin
Manal:
You are welcome Sharmin. :hugfriend
Actually, they prepared from her plasma, five small bottles with different concentration. She used to take from bottle one 0.2 ml of it by injection under the skin then the second and third day o.4ml. Then on the fourth day We began with bottle two in the same way. The same happenes with all the bottles till we reached bottle five where she finished all the solution in it. She used to take the injections a day after the other. So it almost took her like a month and half to finish the course.
What she said that she was feeling better each day because her symptoms were disappearing a bit by bit, she felt well . She is thinking of repeating the course once more as she is psychologically feels that this helped her a lot.
The doctor said that this is possible but she should have a gap between the two courses. I hope that she really continues free of her painful symptoms
manal
Sharmin:
Manal,
I hope that she remains symptom free, rheumatoid arthritis can be very painful and tough on patients. If she has felt well so far I am sure the treatment has worked. Moms are so special, we rely on them so much - especially when our children are sick:) God bless them all:)
I will try to get more info about auto-antibodies while I am in Oakland - especially the method your mom has used - I hope the information will be helpful to everyone.
Sharmin
Manal:
Good Luck Sharmin, always praying for you
:goodluck :goodluck
manal
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