Discussion Forums > Thalassemia Major

Slow rate transfusion and warm antibody

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§ãJ¡Ð ساجد:
I pray your son gets well soon :pray

Zaini:
Sharni,

                               

I hope everything goes back to normal,i know and i can feel what you must be feeling,it even scares me that where all this is leading,i am a mom too,i can feel your helplessness,but i believe prayers can change everything and maani will always be in my prayers.

Be strong,love you.

ZAINI.

Sharmin:
Thank you kindly Sajid and Zaini - your prayers mean the world to us. 
We will have another transfusion later in the week to help us get to a good level. 
The doctor says that things are not as bad as they seem to me because I have a very healthy boy
(thank god) and that this is the first time he is really hitting him with a big dose of steroid - because the tiny dose
has been holding him in the past.  He is hoping that this big hit may help bring things under control again.  He is also looking into other alternatives and is open to whatever happens in Oakland. 

Thank you so much my friends.  Communication with all of you gets me through the most difficult of days.  I hope you are all well. 

Love,

Sharmin

Sharmin:
Our doctor mentioned another method of treatment - to deal with the antibody - I forgot the name - I'll let you all know about it after our next transfusion on Thursday. 

Apparently, it is helpful for many autoimmune problems. 

Manal:
Sharmin, always thinking of you and praying for our little soldier.  I hope everything will be just right and it would be just a matter of time.  :hugfriend You are doing the best for your son :hugfriend

manal

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