Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Zaini:
Liitle Z is finishing her 8th bottle of carao,My father has asked his friend to bring 12 more bottles of carao,an year's stock,and Little Z was like " OMG !! why would nana do that to me " ? :laugh :laugh :laugh :laugh.After so many bottles she still can't take the smell :).
On serious note,i think that carao is benefiting our children,we saw a week's difference in her transfusion intervals,she was regularly going on three weeks,and her pre transfusion hb was between 9 and 9.5,now she goes at four weeks and her hb is between 9.5 and 10.This month after transfusion she had 104 degree fever and a very severe cough,i thought we'll have to go for transfusion on three weeks this time,but her hb at 3 weeks post transfusion was 11.1,now lets see what it will be after 4 weeks.
Thanks Andy for guiding us towards carao and thanks Lloyd for letting us try it.
Zaini.
Sharmin:
--- Quote ---" OMG !! why would nana do that to me " ?
--- End quote ---
:rotfl
Little A is the same way - when I bring him his carao he puts his hand on his head and saying "Oh god why why why.., why is this happening to me." He is such a cartoon.
Good thing I can ignore him and make him drink it anyway :) I think it is really helping too.
Sharmin
Manal:
Sharmin
This is exactly what is happening with my son :rotfl :rotfl and he even gives it names. He keeps telling me who told you about it, but i am happy that at the end they take it :rotfl :rotflI love their sense of responsibility
manal
Lloyd Standish:
--- Quote ---You will be happy to know that my HB today is........ 12 in such a short time
manal
--- End quote ---
I'm real happy for you, Manal! You're thal minor, right? What was the total time you used carao?
All the reports I have received from thal minors have shown dramatic increases in hemoglobin. I'd really like to know if there are cases of thal minor that do NOT show improvement in HGB.
Manal:
Thanks Lloyd so much :hugfriend for everything and for your generous offer
I started the Carao on the 28th of October 2008 with the below data
--- Quote ---2. Date when carao is begun - October 28, 2008
3. Dose given - 2 table spoons, my spoon is 10 ml
4. Age and diagnosis of patient - 35, thalassemia minor
5. Average hb before carao was begun on October 4: - HB is 10.9 - MCV 62 - WBCs count 3.200 - platlets 365,000
6. Whether or not any other treatmen were started during the period that carao was given - : just a mutli vitamin centrum silver but not on regular basis sometimes i take apeppetite supression medication cause i am working on decreasing my weight
--- End quote ---
On the february 7th, my HB was exactly 12 but what is more important to me is that when i was on Carao, the feeling of fatigue that i have each morning when i wake up is not there and this is the most thing i was happy about
As for my son he is on his nineth bottle and i do feel that it gives him energy and i do think too that it helps in reducing the rate of hemolysis when he gets sick. Before using carao, when he get fever, his Hb decrease with a certain rate, after the carao, it is not the same rate.
Did any body has the same observation???
Please Lloyd, feel free to ask whatever you want
manal
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