Discussion Forums > Thalassemia Major

I am in the hospital

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hippievamp:
hey all I was admitted yeaster day due to irregular heartbeat I do not have access to the comp unless i leave my floor and come to the library but, it is not always easy to convince the nurses to let me go.  I have alot of questions and concerns and none of my drs have experiance with Thal so if anyone is willing to talk to me Especially Andy please call my room (412)784-4338

Thank you
brandy

Andy Battaglia:
Brandy,

I'l call a little later today. Meanwhile, see if you can get the doctors to read the information provided in the post at
http://www.thalassemiapatientsandfriends.com/index.php?topic=1451.0;highlight=arrhythmia

This is from the European Journal of Haematology

Volume 80 Issue 2 Page 93-106, February 2008

This is the most up to date information on heart problems in thalassemia and may provide some guidance for your doctors.

I would also suggest that the doctors consult with another hospital where thalassemia is treated (perhaps Pittsburgh Children's hospital).

I"ll talk to you soon.

Andy Battaglia:
I just got off the phone with Brandy and she is being released from the hospital, so she's alright at the moment. We're going to have to encourage her to faithfully comply with her chelation, as this is likely related to ion overload in the heart. The information in the link in my previous post is crucial to understanding heart disease in thalassemics and should be provided to every doctor who is dealing with a thal patient with heart trouble.

Canadian_Family:
Great Work Andy,

Thank you for all your efforts. You are amazing.

Manal:
Brandy, i hope that you will get well soon and pleeeeeease don't forget your chelation. Thanks Andy for being there
manal

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