Discussion Forums > Thalassemia Major

I am in the hospital

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§ãJ¡Ð ساجد:
Oh my,

I hope that Brandy can take Exjade/L1. Please get it started as soon as possible.

:hugfriend

PositiveVibes:
I really hope Brandy will soon find the best solution for dropping down her iron. I used L1 for last years and I am really pleased with it, and know it works on me. We all know that it is very good for reducing the iron from the heart and that is why I think it will be of great help to her.  If there is somebody who can help her in getting L1 and starting it as soon as posiible, it will be wondeful!
I wish you luck, Brandy!:>

sydneygirl:
i hope brandy gets better real soon and can tolerate the exjade to get her ferritin down! i know how it is to have an allergry to
desferal,as i have the same problem,as andy mentioned for all these years i could do nothing but take desferal and have reactions( i have severe swelling,hives and bruising and very itchy)but since ive been on exjade for the last year and a half its been a godsend.Thank goodness for technology starting to go forward for thals!

Sharmin:
Dear Brandy,

I hope that you are well.  I don't know what to say about what is going on with your chelation. 
I too am frustrated with the hospital for sick children - they are great when they are on your side - better than great.  They do not think twice before letting you go though, as soon as something changes they are not afraid to abandon you.  Have you tried contacting Oakland?  Let us know how we can help.

Sharmin

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