Discussion Forums > Thalassemia Major
Update and questions
§ãJ¡Ð ساجد:
Hi Sharmin,
I'm so happy for you :happyyes
Bostonian_04:
Sharmin,
I am really Happy to hear that your little soldier is doing very well after a tough time. Best of luck to him for a very bright future.
nanuaru:
--- Quote from: sharmin on August 20, 2008, 01:48:50 AM ---Hi Shamim,
My best wishes are with you . may the ogd bless the child keep up ur morale :hugfriend
My son's summer has been busy with the rituximab, ivig and transfusions. His rituximab was completed on aug 7th. He received a single unit tx (approx 300cc) on aug 8 (pre tx hg 91). His pretx hg today was 82. I know that antibodies have a half life of several weeks - maybe a couple months - but is this drop too much at this stage of his treatment Andy?
He had an ivig today and is having a tx tomorrow, he was in 3 days last week. Frankly, he just wants to play as his summer holidays are coming to an end. I am so worried about him getting depressed if we have to have so many frequent visits. Does anyone have any ideas on how to prevent this? I am emotionally exhausted myself, but I am doing everything I can for my son.
Also, there are different opinions on whether or not to continue the ivig treatments - what do you think Andy?
Thank you so much everyone for your support,
Sharmin
--- End quote ---
Sharmin:
Thank you everyone for your wishes, thank god thank god a million times!!
Today his hg after 3 weeks post tx is 97 and his ferritin is 1320!!!!!!!!!!!!!
I know that it is not an exact measure of iron, but it is an indicator that things are improving!! When his iron levels in Oakland were 2880 his ferriting levels were 2300 - so we know that there is good correlation. The trend is promising.
I love you all soooooo much!!! May god bless you all and give you all the best of health!! None of this would have been possible without your love, prayers and wonderful advice!!
:love :love :love :love :love :love :love
Sharmin :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend
nice friend:
:congrats
Good to hear that sis :
after all he is doing well .... Congratulations....
Ferritin is not that much high and
its still decreasing its a super good sign ...
you have to work a little bit more to get it between normal ranges ...
you suffered alot , after a long night of suffering , its a new dawn ...
Best Regards
Take care
Umair
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version