Discussion Forums > General Chatter
Just wondering how Umair is doing and if anyone has heard from him
baal:
umair buddy sad to hear about ur condition... ???
please try to do the IV desferal therapy...
i did it too every second week...
and a quetion i have too....
should i take l-carnitin too..and how mutch...
and how it helps? panos
Ayesha:
Umair: in 2005 Salman had this swelling problem, his legs were swell then some other parts... when we took him to hospital they did ECG and few other test and got to know that his heart's right side was filled with water..
They gave him LAXIS, through urine all the water came out and they gave few other medicines too, cardiologist, endocrinologist inshort everyone was involved..
I would recommend u shud go for ECG!, and yea.. he was on IV desferal 24/7! :) that helped too!
prayers always with u!, be strong!
Sharmin:
Panos,
L-carnitine will help you in a few ways. It will protect your body from the oxidative stress of iron. L-carnitine is also a NO inducer. NO helps our blood vessels adapt to changing blood volume by making the blood vessels more elastic so that they can enlarge or shrink as required. In thalassemia for various reasons patients often have lower levels of NO and the blood vessels become more rigid and less able to adapt to changes in blood volume and this leads to pulmonary hypertension. L-carnitine helps this situation by inducing NO. Watermelon is also said to be an NO inducer. I definitely think that all thals should be taking L-carnitine, and this is the recommendation in Oakland as well.
Sharmin
Manal:
Panos
The dose for L-carnitine is 50-100mg per kilo daily divided into two or three doses.
The above mentioned studies were done on 50mg/kilo
manal
Sharmin:
Umair,
I hope that the swelling has subsided. How are you feeling now?
Sharmin
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