Discussion Forums > Thalassemia Major
My new born baby has possible Thal major
Andy Battaglia:
Not to blow my own horn, or our own horn, but what Sharmin said is very true. Her son is a good example of what can happen when you put into practice what is learned here. I think the same can be said for Zaini and Manal and others and how well their children do because they follow good recommendations.
And I'm going to add something here that I believe is extremely important for thals but has been largely ignored. Studies have shown that those who are low in magnesium have a higher rate of gallstones. That alone is very interesting but when you put it in the context of thalassemia, a path develops. When I read about this study, I asked some questions.
What are gallstones caused by? Excess bilirubin.
What causes excess bilirubin? Hemolysis-the breakdown of red blood cells.
What is common here? Magnesium.
Magnesium depletion in RBCs causes a breakdown of the RBCs, creating bilirubin, which builds up and eventually leads to gallstones. So the question arises.
Can magnesium supplements slow down hemolysis and help to prevent gallstones? I want to know and I hope some patients will give this a try and see if their bilirubin levels change at all after magnesium supplementation. I do feel that magnesium should be taken with calcium and vitamin D, so please, do use all three.
We are breaking new ground in this group and if patients and parents are wiling to try, we will get answers to many questions. We are becoming a real force in the world of thal and I do mean we. Our community can lead and help improve life for thals around the globe.
Kathy11:
--- Quote from: sharmin on January 24, 2009, 08:28:06 PM ---
Never underestimate what you learn here - and never forget to ask questions if you have them. The answer to your question could save a life.
Sharmin
--- End quote ---
Dear friends
I believe that this forum has thaught me how to manage and extended my life, I have not look back .Since I joined this group,it gave me strength, I have been able to ask for the required care from medical Professionals,
I have been able to get my illness under control ,
I've learnt so much about my condition and still learning.
To top it all , I've met some wonderfull people that enhance my life,
For all the above I am full all gratitude
For me personally ,It is special and I do love everyone of my friends in my own special way.
I feel richer for it Thank-you, to everyone for being there when I needed you the most
You know who you are no need to mention names
Kathy
Dori:
--- Quote from: Andy on January 24, 2009, 10:25:34 PM ---
And I'm going to add something here that I believe is extremely important for thals but has been largely ignored. Studies have shown that those who are low in magnesium have a higher rate of gallstones. That alone is very interesting but when you put it in the context of thalassemia, a path develops. When I read about this study, I asked some questions.
What are gallstones caused by? Excess bilirubin.
What causes excess bilirubin? Hemolysis-the breakdown of red blood cells.
What is common here? Magnesium.
Magnesium depletion in RBCs causes a breakdown of the RBCs, creating bilirubin, which builds up and eventually leads to gallstones. So the question arises.
Can magnesium supplements slow down hemolysis and help to prevent gallstones? I want to know and I hope some patients will give this a try and see if their bilirubin levels change at all after magnesium supplementation. I do feel that magnesium should be taken with calcium and vitamin D, so please, do use all three.
--- End quote ---
Andy,
That is exactly why my galbladder was taken out at the age of 3.
I do take calcium daily (when i do not forgot it, what happens 4 days a week). I take them all the three. (I am not sure about calcium, but that is an other discussion).
Very stupid question:
They can check your billirun levels? They never do and I am sure they never will do when I ask for that. You need others for that and not only my intuition. :wink
Sharmin:
Okay guys,
I am totally going to brag - little A's team lost 3 - 1 today - and little A had the only goal for his team. He is scoring at least 1 or 2 goals every game. This is the same boy who was having a hard time keeping his hg and energy up last year. You cannot imagine the confidence it gives him to be good at something and to contribute to his team this way - thank you all so much for helping my little guy get here. Every child with thal can reach their dreams and be their best!
:thankyou2
Sharmin
Dore, it is possible to measure bilirubin. You can ask your doctor for the test.
Zaini:
A little bragging for me too :wink
Just yesterday,my sister was laughing her head off,what happened was that my cousin ,who is a doctor,came to our place,and i was asking her about genotyping,she said it's kinds DNA analysis,i said yes i know and it's done on WBCs,she said WBCs? no RBCs!! I said but RBCs don't have a nucleaus,you must know that,and she got so embarraced and said yes i forgot.My sister said oh you can't win my sister she loves biting doctor's heads off now a days, :rotfl and she can do that beacuse she keeps searching and learning,while you doctors have stopped doing so :wink.And this is all due to this forum. :lovethissite
About Magnesium,Little Z has also started taking Osteocare,it's kinda expensive here as it's imported from UK,but well,if it helps her stay healthy,i'll manage it somehow.
I believe one tablet is enough for her daily? because it says so on the website under the chewable ones,and the chewables and tabs have the same formula.
What is a bit strange is that the Osteocare i am getting here,it's pack is different from what is shown on site,and even the formulation isn't same,On site it says it contains Manganese,Copper,Selenium and Boron too,but the pack i got says Calcium,Magnesium,Zinc and Vitamin D only?Any thoughts?
Zaini.
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