Discussion Forums > Thalassemia Major
My new born baby has possible Thal major
Sharmin:
Zaini,
You're brilliant :)
Let me do a little research for the Osteocare, I will get back to you. I think that the trace minerals are a very important part of the Osteocare and are very important for bone health. In the meantime it is great that you have started her on the Osteocare as I have heard a few people say that they have had minteral dificiencies after beginning Exjade (however I don't know if there is any connection at all or not.)
Sharmin
nice friend:
:agree Wat Andy has said :
--- Quote ---We are breaking new ground in this group and if patients and parents are wiling to try, we will get answers to many questions. We are becoming a real force in the world of thal and I do mean we. Our community can lead and help improve life for thals around the globe.
--- End quote ---
Wat Kathy has said : Same happened to me when i joined this group ...
--- Quote ---I believe that this forum has thaught me how to manage and extended my life, I have not look back .Since I joined this group,it gave me strength, I have been able to ask for the required care from medical Professionals,
I have been able to get my illness under control ,
I've learnt so much about my condition and still learning.
To top it all , I've met some wonderfull people that enhance my life,
For all the above I am full all gratitude
For me personally ,It is special and I do love everyone of my friends in my own special way.
I feel richer for it Thank-you, to everyone for being there when I needed you the most
You know who you are no need to mention names
--- End quote ---
Wat Sharmin has Said : this site and its members gave me as well ...
--- Quote ---I am totally going to brag - little A's team lost 3 - 1 today - and little A had the only goal for his team. He is scoring at least 1 or 2 goals every game. This is the same boy who was having a hard time keeping his hg and energy up last year. You cannot imagine the confidence it gives him to be good at something and to contribute to his team this way - thank you all so much for helping my little guy get here. Every child with thal can reach their dreams and be their best!
--- End quote ---
As Zaini has Said : This site taught me as well ,
--- Quote ---Just yesterday,my sister was laughing her head off,what happened was that my cousin ,who is a doctor,came to our place,and i was asking her about genotyping,she said it's kinds DNA analysis,i said yes i know and it's done on WBCs,she said WBCs? no RBCs!! I said but RBCs don't have a nucleaus,you must know that,and she got so embarraced and said yes i forgot.My sister said oh you can't win my sister she loves biting doctor's heads off now a days, and she can do that beacuse she keeps searching and learning,while you doctors have stopped doing so .And this is all due to this forum
--- End quote ---
and now i m able to give answers to anyone's concerns about thalassemia and able to tell them how to manage it ... now i can discus about my case to my doctor , now i can manage my self by the grace of ALLAH (GOD) .. now i can tell others wat kind of treatments they need at their stages (i also tell them to ask about it to your doctor before starting this treatment ). .. now my cousins , my doctor , my all other relatives all says that " chamaktay he ja rahay ho kounsi cream lagatay hoo ?? ( you're getting shiny day-by-day which cream you are using ??) " soo that is the change thyour advices and guidence bring in my life and of-course The needles which Andy sent me , that worked alot for me . those needles increased the rate/average defseral Vials per week, it was difficult to use 9 vials in a week ( 3 pricks ) , wit that neddles i bcame able to take 12 vials per week and that show's its effects in drop in my S.Fe ... now i know wat is good and wat is bad for me that is a big change ....
:thankyou2 Andy , :ty
:thankyou2 All the members of this site for everything . :ty
:thankyou2 to the entire site .
:thankyou2 Thanx Alot ,
hey dont think that i m gonna leave you, so you can enjoy the stay on this site , i will keep annoying you All , you cant stay safe to my junk posts hahahaha ... i m always there to send out of topic messages :wink ... As i said somewhere in my previous posts under the topic story of my visit " God set me on this site to Annoy peoples " .... i m doing my job and will never quit , bcoze i like this job .. hahhahaah
Best regards
Take care
Umair
Zaini:
Keep annoying little brother :wink because we are so used to of you annoying us that if you won't annoy us we'll get annoyed that why aren't you annoying us? isn't that annoying ? :rotfl :rotfl
Zaini.
nice friend:
Hi Zaini Sis ,
yeah in my presence any out sider annoy you people i cant tolerate it , and i will never let it happen ( its my job only :grin ) ...
--- Quote ---What is a bit strange is that the Osteocare i am getting here,it's pack is different from what is shown on site,and even the formulation isn't same,On site it says it contains Manganese,Copper,Selenium and Boron too,but the pack i got says Calcium,Magnesium,Zinc and Vitamin D only?Any thoughts?
--- End quote ---
Well , after reading this checked my OsteoCare tablet's packagin and i found that is Imported by a Local Medicine Importer Company named
Marketed By
" Acti Health Food
Paramount of Science And Nature
Karachi - Pakistan
E-Mail: actihealtfood@yahoo.com
i think acti health are the importer of this medicine ,as ICI was the importer of Ferriprox soo ICI changed the packing and gave their Symbol/logo on the FErriprox's packing. if you have any Ferriprox's packaging you can seee that .. soo i think the product is same but the importer gave their Trademark to osteocare , as they are importer and seller of Osteocare in Pakistan... i hope i make the sense ...
i m using this one osteocare 30 tabs in a pack , and vitamins and mineral details are same as mentioned here and on the packaing f my osteocare tablets .... here are the details. ..
http://www.vitabiotics.com/addtocart.aspx?ID=16
--- Quote ---Osteocare Original 30 Tabs
A formula to help maintain healthy bones, Osteocare® Advanced is Britain’s most popular calcium supplement, with the exact recommended daily allowance of 800mg calcium and 300mg magnesium plus vitamin D and zinc to protect bones.
--- End quote ---
Best Regards
Take Care
Umair
Kathy11:
Hi Umair,
The Positive from your "annoyance"" :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl makes us happy because it indicate, to us, that you are full of life and kicking :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
So you see even those little annoyance we like, we need your sense of humour, You are the best if I had to grade you :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl,
Continue to do the same we are here to annoy each other :wink :wink
Kathy
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