Discussion Forums > Announcements

1st Pan-Middle Eastern Conference on Haemoglobinopathies ..May 2009, Syria

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Sharmin:
Mariam,

I highly commend you for what you are doing for those children, that is truly amazing and wonderful.  May you have all the strength and patience in the world to take care of all of the children in your care.  May little Aysam be blessed with good health and a long life. 

Sharmin

Zaini:
You are amazing Mariam  :hugfriend i am sure God will reward you here or here after,Aysam is very lucky to have you as a mom  :hugfriend.

Zaini.

aysam:
THANKU ALL
for yor nice comments i am doing only what i think you all will in my case
AYSAM TODAY is looking very pale so i took him to hostpial i did i blood test
GOOD NEWS IS THAT his liver is very good going down
BAD NEWS his hemaglobion is 10 and only two weeks ago he put blood so we are tranfussing in a week
VERY BAD NEWS HIS FERRITIN LEVELS 3400 not comeing down
i dont know the long term complications on this i am so confussed why his dose is up and he takes it on time why >? its so high always

Dori:
Hello, I am very touched by your story. You are amazing and a very good person/mother.
I am sorry to hear that his hgb has dropped and the ferritin stays high. I dont want to make you worried, but there is a type of iron overload what only affects little children. Thats all what I know about it.

Best wishes, Dore

aysam:
what type of iron im not paniced i swear plaese tell me i need to do some resach

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