Discussion Forums > General Chatter
Dore's appt
nice friend:
Dore,
[ its an opinion only ] : you're on extremely high dose , you must decrease it bcoze you have a history of allergies from Chelators ( Deferiprone, Desferal and as far i remember from Exjade as well ) and now you are trying the extreme dose of it .. 40mg/kg is the latest finding and i think it is for the severe ironn overload condition, you must go back on 30mg/kg dose .... i think that was working fine for you , so no need to increase the dose ...
about swollen feet : when i was having this probleme my doc told me to dip feet in warm Salt added water for 10-15 minutes and then spread cream ( vit-e cream or any cream ) it , ( i used olive oil for this purpose ) ... if it is the samething as mine was then i hope that, it wil help you ...
Best Regards
Umair
Manal:
Dore, I too agree that you should lower it to 30mg/kg especially that your ferritin is not that high
manal
Andy Battaglia:
What has been said is correct. 40 mg/kg of Exjade is used when the ferritin is very high AND it is not responding to a lower daily dose. This dosage should be reserved for those cases only.
Dori:
Hmmm, this time I was the brave patient who accept doctor's order. I will play again my own doc.
I will weight myself now. Oops, I lost an other kilo. Even with clothes it's only 40,7 kilo. I guess my weight is 40,0 x 30 =1200. There are only pills of 500mg left, so I will go to 1000mg.
Hopefully I will feel better with this.
Muchas gracias,
Dore
p.s. Umair, do you mean salt water or soda water?
Edit: I have used 40mg/kg for the past 3 months. Recently I restarted with documenting the things what are happening in "Medical Land". I got sometimes I hard time to remember everything...
nice friend:
Dore,
Soda Water for dipping feet :rotfl :rotfl :rotfl .. just kidding ....
Dore, i was talking abt salt and water , all you have to do is to take warm water in a tub/drum and then put Salt in that , and then dipp the feet in it for 10-15 minutes .... and after that take out your feet and cover them with a towel until they come to normal temprature , then spread any cream on that ( Vit-E cream or Olive oil , i used to spread olive oil ) ... feel free to ask if i missed anything ...
Best Regards
Umair
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