Discussion Forums > Thalassemia Major

Update from Cherieann

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Zaini:
Cherianne,

i am so impressed,here we are worrying about our kids,and trying to make their lives better,but what you are doing is noble,you are trying to make other's kids lives better,taking care of other's kids,and kids who have special needs,with whom even parents sometimes feel helpless,and who are  less able to take care of themselves,teaching them must be hard.I salute you  :hugfriend.

jade:
HI Cherianne

Nice to have you back.  I also am a teacher. 

Quote:
I start at 8am and morning internal is not until 11:20 so its abit scary for me at times keeping my diabetes under control until then, then lunch at 12:45.

Do you mean you  (the students and you as well) do not have a break in between?  Well, students as well as teachers need a break in between to be able to optimise assimilation and understanding.  If you give the students a small break of 10 mins (to go to toilet, eat and drink something) you will be able to eat something also (unless it is strictly prohibited).  In my country, we work from 8am to 10 am, break up until 10.10 and then continue until 11.20 am, recess time until 11.50 , work until 1.15, break of 10 mins again and continue until 2.30.

Take care of yourself, try to talk to your boss and explain the situation .

We have been told that a student can concentrate well for about 30 mins maximum not more.And they should be at ease ( not hungry nor anything else ) to be able to assimilate.


Quote:
Might have to go back to 24 hours.

How do you manage that at work?

Take care.  Try to reduce your ferritin.  Wish you the best.

Jade

cherieann:
Umair, Jade & Zaini
Thank you, I feel pretty humble and unworthy with all your comments.
I don't feel that I am any more special than any of you.
I have always checked in during my absences but never logged in or responded as I wasn't feeling too wonderful.

Umair I have always said I will live a long and happy life just so I can annoy my husband hehe.
Its pretty full on at work with the new changes but I love the challenges each day brings. You are right that the more I am occupied, the less time I have to fret.

Zaini thanks for the compliment but I do it for the same reason you do it for your child.
We want the best for our children and to know that someone cares for our children.
A mother's love is endless when it comes to her own.
I do it because they are my children, they are our future. It also helps the parents to know we will care for their treasure while the child is with us. It certainly takes that worry from them.

Jade Your times are the same as mine. We start at 8am in meetings in class from  840 to 1120 then class 1140 to 1245 in class from 140pm to 310pm. school finish then its meetings til 400pm if lucky otherwise 500pm.
Lots of ongoing professional development.
Each class can allow students to go toilet thats not a problem. In our classroom we encourage our students to drink water when they like as we have a kitchen and they don't need to go outside but thats our class. Overall the principal prefers that we do not eat in our classrooms and to stick to the timetable.
Hes pretty understanding to our student's special needs and I know he will be okay. I just need to get courage to tell him. haha I annoy him alot for things our students need but not myself.
I will be going back to 24 hour. I'll cope. I'm pretty open with my students. I just wear my pump and keep away from the violent students in the school. hahaha.
Instead of my yearly talk where I explain about my thalassaemia and transfusions, I can be the show and tell.
They will certainly enjoy that.

Smurfette:
KIAORA!!!!

Wow your work schedule sounds alittle like mine, hectic!!!! I havent been on much these days either.
Cherianne its sad the NZ government havent authorised for subsidy for Exjade!!! Wow!!!

Exjade here in australia is subsidised by the government here..You can get an authority scriipt from the doctors and get it from the pharmacy... when I was on it, I ordered it from my work. hehehehe
Some of the perks for working in pharmacy...

But I am back on desferal  :( and not liking it at all... I am getting too many lumps and they wont go away for at least a few days or a week...

I hope the application goes through for you... I really do..

Take care

cherieann:
Kia Ora Smurfette :biggrin
Pharmac control what the government subsidises so yeah I have everything crossed.
Hahaha The perks of my job is being busy hehehe
I understand about the lumps and have empathy for you.
I have had the needles in my arms and couldn't use them for at least a week without pain. One of my brilliant ideas to let the legs and stomach lumps go down. Used the backside and fat around thighs but when you sit or are lying in bed, you get the pain that reminds you of where the needle was hahaha.
How come you have gone off exjade? if you don't mind me asking.
I know that you are very lucky in Australia with regards to resources available for Thalassaemics. It is more common there than here in New Zealand. I had to come to your country before I actually saw a sign saying Thalassaemia Medical Centre. It still brings tears to remember how I felt after years of not belonging anywhere.
Thank you for your kind words and heartfelt wishes.
I sincerely wish you all the best as we continue our lives with Thalassaemia
Arohanui
Cherieann

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