Discussion Forums > Thalassemia Major

Unaware!

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SF:
Hi Ray,

Welcome aboard! I just joined the group last weekend myself. I'm so glad I did, and I can assure you that you'll also benefit from the great friends on this forum!

Your hemoglobin levels seem to run low. I'd suggest you get a thorough evaluation of both your blood transfusion regimen and iron overload by a hematologist, and yes, you definitely need to get on a chelation therapy. If you didn't like one chelator, try another one (under an approval and direction of your hematologist). It's no reason to give up.

Take care,
SF

Ray:
Thanks Zaini, Andy, Nice friend, Narendra, Manal, Sf,
 thanks for the replies and suggestions,
 I think the name of the chelating drug which I used previously was desferoximine,
 the haematologist has suggested another one I am not sure but will find out.
I do drink a lot of tea. not green tea but regular tea with milk so I guess thats helpful too,

thanks a lot again for welcoming me and giving your suggestions, I ll keep posting, God Bless you all.

Zaini:
Hello Ray,

Desferoximine is generally known as desferal,how were you using it? its administered throught a needle placed under your skin for about 10 to 12 hours.

You can ask your doctor about a new oral chelator called Asunra.

Zaini.

Ray:
hi Zaini,
              I was given these capsules which had to be taken once in 6 hours orally, the haematologist has suggested a new one i think its desirox, i am not sure but will find out and let you know, have a nice day....God bless you

Zaini:
Ray,

I think you are talking about Defriprone/L1/Ferriprox/Kelfer.But these are supposed to be taken along with Deferoximine.So if you want oral chelation only ,yes Desirox is much better option,it will take time but i hope it works,Have you started taking it yet ?

Zaini.

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