Discussion Forums > Thalassemia Major
Unaware!
Andy Battaglia:
Although deferiprone is an excellent choice for combination chelation with desferal, it can be and is used alone with great success. I would point to Poirot as one who has used only kelfer for many years and has kept his ferritin well under control. Any of the three available chelators can be used by themselves. With Ray's ferritin level hovering just over 2000, any one chelator would be sufficient, unless a liver scan showed a high iron load. Kelfer alone, would probably be sufficient.
Lena:
With ferritin around 100, I used only ferriprox for one year and then proceed to an MRI.
It showed heart and liver iron within normal range, no iron at all. However liver - due to my taking only ferriprox for the whole year - had accumulated a little iron, still within normal range. Of course I cannot say that this goes for everyone, it might happen only to me.
Lena.
Ray:
hi Guys,
sorry that I Did not know the name correctly, I had been taking Kelfer in 2007 and stopped, so if desirox is good I could try that, thanks, God bless you
SIL:
Hi evrybody!
I'm so glad Ray has joined the forum and tanx to all of u for guiding him. He is usually the advice-giver in our family, now its good to see him on the receiving end :biggrin :clap!!!!
Hope he finds the right chelation drug. I would also like to know what his diet should be like. Doctors adviced him not to include greens in his diet, is it right? What about chicken(his fav), fish and meat? Any fruits or veggies he should avoid taking?
His urea levels are also high.
:heartpink
Zaini:
Hello SIL,
Thals should avoid red meat,chicken is fine,green veggies like spinach does contain iron,but iron in red meat is more readily and easily absorbed by the body,while iron in veggies,which is non-heme iron is not that readily absorbed,but for me,if some one is trying to lower their ferritin,they should avoid iron in diet,as in thal intermedia body automatically absorbs more iron from the food.
Zaini.
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