Discussion Forums > Thalassemia Major

19 weeks pregnant and found out today that baby has beta thalassemia major

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Dori:
Hello Carisma,

When I post here for the first time I felt very down and did not had the energy to read all those posts. The day after I post I read that you have endome???? I have a friend with that too and she told me always that it is almost impossible to become pregnant with it. However her situation is completely different then yours. She got ulcerative colitis as her number #1 disease and is always in so much pain. It seems that UC is genetical and that is why she decided to never have a child (of her own). I do believe that UC is much worser than a red blood disease. My friend want the docs to operate her for emd?? but they don't want to do that because of the UC. Sounds that a bit similar to you? I really wish I had a magic stick to make her better.

I can not be a real part of this discussion. But I must say that I don't see things so bright as some of us do.
To all the mothers I want to say: Don't feel quilty!!

It's strange, but I never have thought about the fact that my mother has felt quilty about it. I have feel me always quilty that I was not that healthy child.

I really hope you pregnancy will go smoothly. Weren't you 27 weeks pregnant? That's almost 4 months. 5 months to go is September......?

Best wishes, Dore
p.s. not thal, but pyruvate kinase deficiency

Zaini:
Dore,



--- Quote ---To all the mothers I want to say: Don't feel quilty!!
--- End quote ---

To all patients,please don't feel guilty,i think i am safe to say on all mom's behalf,that we are glad to have you in our lives,as our daughters or sons,we are proud of you,and we'll be there for you no matter what. :hugfriend

Zaini.

Manal:

--- Quote ---we are glad to have you in our lives,as our daughters or sons,we are proud of you,and we'll be there for you no matter what.
--- End quote ---


Well said :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :exactly :exactly :exactly :exactly :agree :agree :agree :yay
manal

Dori:
I hope the woman who start this topic is doing well.

 :flowers

Best wishes, Dore

Zaini:
Hope you are well Charishma  :hugfriend.

Zaini.

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