Discussion Forums > Thalassemia Major
my partner has Thala major
Andy Battaglia:
Confusedgirl,
Is your bf being treated for heart failure now? The key is IV desferal for up to two weeks. Heart failure in thals is reversible. For more, see the post at
http://www.thalassemiapatientsandfriends.com/index.php?topic=1451.msg11816#msg11816
PositiveVibes:
Hi ! I just want to share my opinion with you. and to tell you that there is nothing better than loving the person who si next to you, no matter if he is deaf or he is blind or as it is in our case - having thalassemia major. if you do some work and read about the modern treatement of patients with thalassemia you will really understand that nowadays these people live, work, have families as the normal people around us. Everyone has some health problem and thalassemia major does not make someone uncapable and with limited abilities to live his life happily. So, please take it into consideration that if your bf receives a proper treatment I am absolutely sure that you will have wonderful time together with children and beautiful moments. Keep in mind that there a lot of improvements to the treatment of all patients and I hope there will be even new technologies and methods that will help us. Wish u luck !
PositiveVibes:
--- Quote from: Zaini on May 03, 2009, 06:08:38 PM ---UK has very advanced thal care,there is a very good hospital in London where a thal specialist is present.
Dr. Farrah Shah, Specialist (Thalassemia Physician)
Emma Prescott, Specialist (Thalassemia Nurse)
The Thalassemia Clinic, Mercers Ward
Whittington Hospital NHS Trust
Highgate Hill, London, N19 5NF
Phone Number
02072723070
Zaini.
--- End quote ---
Sorry for asking this question here, but are you having your treatment there? Is this the best hospital for adults with thalassemia major. I intend to transfer my education in the UK and I am happy to see that u have some information about a doctor and nurse in London. :) If you know some details about the particular treatment there, please share it with me :)
confusedgirl:
Hey andy. Thanx. No hes not being treated for heart failure yet. I don't think its actually fallen to that yet. He was being monitored and they want to put a portocath in and iv chelation. He is v.sad n scared. When he was young he had a portocath which got infected and he got really ill. I don't really know what is gna be done.
Andy Battaglia:
Hi Rozitka,
I know many people who have been treated at Whittington. Dr Shah and Nurse Emma are very highly regarded by patients and parents. It is an excellent treatment center. Also, I asked nurse Emma at the Singapore conference about foreign students who have thal and they are covered for treatment in the UK while they are studying as long as they go to a UK university. I would suggest contacting them in advance.
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version