Discussion Forums > Thalassemia Major
Change in treatment
PositiveVibes:
Zaini, thank you so much for this important information. I go to transusions every 3 weeks and my hb is btw 8 and 9, which is low :( I don't know what is happening but for the last years I keep that low hb level and have tried wheatgrass, IP6.. but unfortunately theu don't seem to help me.
Does this Carao really have imapct on the hb levels? Are there other people who are pleased with it
TNX a lot :)
priya:
Hi everybody
Thanks you all for your response. :hugfriend
Maha: Thanks a lot. I don’t know why, but from the very first transfusion she has given according to 20 ml/kg.I really don’t know about Lasix. I will check with her Dr. Regarding the amount and lasix In the next app. Priya is usally given 500 ml in the time period of 3 to 3.5 hour which i think is really fast.
I am going to order oestrocrae chewable.
Manal : Thanks for the list of supplement. What about Pharmaton Kidds? Do you think that it can be good multivitamins for Thal. And one more thing is reveratrol is good to give with transfusion.
Zaini: I really don’t know why the Dr. Is giving her with 20 ml/kg. I am going to talk about this. I have already tried Carao with Priya but she Can’t drink it at all, she just vomit. Are you giving Carao to little Z.
Dore: Muchas Gracias. Recormon is erythropoietin a type protein that sometimes helps in anaemia. It can be helpful to thal intermediate in combination with Hydrea. Sorry, I don’t know about cortisone,Lasix.
With lots of love for our little soldiers.
Best Wishes
Dimple
SF:
--- Quote ---Priya is usally given 500 ml in the time period of 3 to 3.5 hour which i think is really fast.
--- End quote ---
Hi Dimple,
How much does Priya weigh? In the US, the blood is infused at or around the rate calculated as follow: 4 x weight (ml/hr). In this formula, use weight in kilograms. So, if a person weighs 40 KG, he/she can be given blood at a rate of 160 ml/hr. That's 4 times 40KG. The first unit of blood is given slowly for the first 15 minutes (at a rate of weight (ml/hr), so, 40 ml/hr in the above example) to watch for any reactions, and the infusion rate can be increased after the initial 15 minutes to the rate calculated by the formula above.
Priya may have been given more blood (20 ml/kg) initially to get her hemoglobin to a normal range more quickly. The amount of blood may, however, be adjusted back to around 15 ml/kg as she starts maintaining a certain Hb level.
Regards,
SF
SF:
Lasix is a diuretic. It helps remove extra fluids from the body and is usually administered in small dose after the transfusion. I would recommend taking it only if Priya or anyone else being transfused feels heavy in the abdomen. If you feel fine and are able to get rid of extra fluids naturally, I would probably not take lasix. If Priya is getting 20ml/kg of blood, I would consider lasix post-transfusion just because it's a lot of fluids that she's taking in.. How old is she?
T @ r ! Q:
How do you implement this tx rate :scratch Is their any sort of speed dial with rate attached (something like ml/hr)? Because here we just do it approx by seeing the frequency of the drops in upper chamber. But that is an approximate way of doing it.
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