Discussion Forums > Working Towards a Cure

Can we support this? PLZ HELP it might be on Oprah next year

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Zaini:
Thanks Mariam  :hugfriend

Zaini.

Andy Battaglia:
I don't know what the purpose of this campaign is, but it seems completely futile. The government of Nigeria has withdrawn the license for Niprisan after Xechem International went into bankruptcy. This may actually be the best thing in the long run. The Nigerian government has the stated intention of taking over production of this drug so that sickle cell sufferers can once again have access to a drug that has been shown to be very effective in reducing the amount of sickling events experienced by patients. The drug is for real and was granted orphan drug status in 2005, but financial difficulties have led to its unavailability to patients.

http://scidev.net/en/health/drug-development/news/nigeria-takes-over-sickle-cell-drug.html


--- Quote ---The Nigerian government will manufacture an indigenous remedy for sickle cell anaemia following the collapse of attempts to produce it commercially by the Nigerian subsidiary of a US-based pharmaceutical company.

Niprisan — marketed as Nicosan by Xechem International, the company that till recently held the licence to produce it — is taken by thousands of Nigerian sickle cell sufferers to alleviate their symptoms. Production slowed down in the last year and sources say it has now ceased completely.

But the government's National Institute for Pharmaceutical Research and Development (NIPRD), which originally developed the treatment, told SciDev.Net last week (19 March) that it is taking over production of Niprisan.

"We wish to confirm that the exclusive licence given to Xechem International for the manufacture and marketing of Nicosan has been withdrawn and the agreement in this regard terminated," said Niyi Ojuolape, special assistant (communication) to the Nigerian Minister of Health.

"In the mean time, NIPRD will be producing the drug to make up for any possible shortfall that might arise before a new licensee is appointed," Niyi told SciDev.Net in an email.
--- End quote ---

Niprisan is a natural extract of plants native to Nigeria, which have long been known for their benefit to sickle cell patients. It has been shown to improve survival rates under severe hypoxic conditions, but I can find no mention of its use in thalassemia. I do think this bears further investigation in regards to its use for all states of anemia to see if it has value outside of sickle cell.

maryo0m:
Welcome zaini, Andy thank you for posting this and for your great efforts as always I know thats what im confused about (what about thalassemia ? )

but the guy in charge was so kind to have answered my question today and he said that they did have tests on thals and dozens of them were sucessfull but they never posted anything about thal because thals werent common.

Manal:
It will be great if we can read any of these studies or how the drug work with thals

manal

maryo0m:
Hi manal

yes I am with you thats why im asking for them...

turns out its not a cure its a treatment

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