Discussion Forums > Thalassemia Major

Question for Andy...

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Emby:
Thank you Andy....I hope it really is the Exjade because they are not sure what it is yet. H did't sleep at all much last night maybe just 45 minutes and he has been vomiting alot even  though he cant eat anytging, keeps bringing it back up. Some blood results:
Urea 11.4
Creatine 138
Alt 53
Bilirubin 71
Had Vitamin K to help clotting

Emby:
scan done of liver spleen pancreas stomach kidneys.....alhamdolillah all is well. Drs saying they think it is due to exjade. Praying he gets better soon with God wills.

Andy Battaglia:
The creatinine clearance is good, so the kidneys seem safe. I'm not certain about the bilirubin number. Either it's a different scale than what I am familiar with, or he may have a gallbladder issue (gallstones are common in thals). Has he been keeping well hydrated while using Exjade?

Emby:
He doesn't have a habit of drinking between meals...maybe just up to 2 1/2 to 3 litres.
He is not allowed food or liquids at the moment. Was not able to keep it down at all.
Allah is taking care of him...

Emby:
Andy, H's reading for the pancreas is 300...the urine still shows glucose though the bilirubin and creatinine has reached normal levels. His blood test show that he is dehydrated so he has had 500ml of liquid twice now transfused quickly within 20 minutes and has been on liquids anyway round the clock since Sunday. His blood pressure is 150-162 over 110 and there has been problems with blood clotting and has 2 doses of Vitamin K via the veins. Alhumdolillah he looks well and the leg muscle pains have gone.He is on antibiotics to fight any infections he may have. Do you have any idea what could be happening at all? Can you ask for advice from someone....I am very worried.

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