Discussion Forums > Thalassemia Major

Question for Andy...

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Andy Battaglia:
Radiation is usually reserved for severe cases where spinal pressure is painful enough to require action. The hydroxyurea can have the added benefit of boosting the Hb level and has been found to be very safe in the doses used with thalassemics. One other possibility is simply the pain associated with low Hb, as the bone marrow begins to expand to try to produce RBC's. This expansion is felt in the bones and can be quite painful. There are very good reasons to keep the HB above 9-9.5 all the time.

Emby:
Thanks Andy,

.......... :tired ...thats me at the moment though not quite flat on my face yet at 2am...then it will be :sandman

Who put together these smileys...some are hilarious...that great big syringe one...haha

Andy Battaglia:
The smiley's were all added by Danielle, our co-administrator. We don't see much of her on the site these days but she still takes care of the technical stuff. One good note was she recently told me on Facebook that her ferritin is really low now that she's been taking Exjade regularly. Her T2* also came out good.

Emby:
Danielle has matched human moods and emotions perfectly with the smileys....i have read some of her posts..she has such a strong personality.  She has been through so much in her life but carries herself with incredible strength...there are some very insperational people on this site.

Andy Battaglia:
Yes, Danielle has had to deal with many serious health issues that have nothing to do with thalassemia, in addition to osteoporosis, which is thal related. She has also been busy with school as she furthers her career, so she doesn't have a lot of free time.
Facebook becomes a good way to keep up on a lot of people who don't visit here so often. 

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