Discussion Forums > Thalassemia Major
Question for Andy...
Lena:
Emby,
when did your son last do the MRI?
Lena.
Zaini:
Andy,
Glad to hear Danielle is doing well,convey our best wishes to her :) .
Zaini.
Emby:
Lena....July/August '09.
They have had this sort of pain attack many times before this but when there are beads of sweat coming down their faces its definately something more than a sharp pain.
Lena:
Emby,
I also have extramedullary hematopoesis creating small masses with no pain and no side effects. I came to know about them through my MRI. A lot of thals have these masses but they keep them under control when transfused with high hb- above 11.
I am curious though about the nature of your son's pain,Emby...Please keep us posted.
Lena.
Emby:
Lena....it's possible to have this and not have any symptons? When exactly did you find out that you had this?.....and because this is common in people with thal, why isn't their Doc aware of this.....it's so good to know you are not effected by it.
I was grocery shopping this afternoon at a local supermarket, with my other half, and this striking woman, very smartly dressed, stopped with her trolley load to let me pass. She had a lovely smile warming her face...but i probs had a bigger smile than her because i had to stop myself from shouting out ''Lena....!!'' She was the spitting image of you!......strange feeling.....although i don't really know anyone here.... i feel i know you all.
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