Discussion Forums > Thalassemia Major
Little Ari
Dori:
I am glad to hear Ari (and parents) is doing well. :hugfriend
Cari:
Ari had his 2nd transfusion last thursday. His hg went from 9.7 to 6.9 within 3 weeks. This time, it took a less time to find blood and more time to find a vein! They poked him 11 times! Poor boy was so upset...i think we were even more upset!
Anyhow, he is doing better although i find him to be VERY red at times....he looks like a little lobster :) I've also noticed he's sweating more and that he has a rash consisting of small red bumps that do not seem to be irritating him but we can see them all over his body. It did not happen right away - he was transfused thursday evening and we really noticed the bumps today..sun. He had a similiar rash last month only it came about a few days after the transfusion. It may or may not be related...i cannot really tell yet.
Anyhow, just wanted to update...Hope everyone is well :)
Zaini:
Carisma,
Glad to hear little Ari is doing well :hugfriend finding vain will take some getting used to,and with that small kid,its hard for us parents too,but kids are amazingly resilient and they fall into a routine more easily then us,so it will get easier :yes .
Zaini.
Sharmin:
Charisma,
I am glad that Ari received his transfusion, and I understand the difficulty of finding a vein for transfusion. Remember, that is the most difficult part of thalassemia - those moments that are spent finding the vein. After that he gets in blood and he is healthy for weeks.
I don't think that the drop is too rapid for a 3 week period. Once they begin transfusing him at a pre-transfusion hg of > 90 he will not drop so low anymore.
Wishing you, Ari and your entire family the best. Ari will get better with this over time - and it will become much easier on you as well.
Best,
Sharmin
Madhavi:
Carisma,
My love and wishes are with Ari and you all....sorry I hadnt seen this post earlier....
I envy that you have someone like Sharmin to help and guide you the way she does....! :hugfriend
And I am surprised at how little the doctors know and do for patients of thal back home in India-even when it is a private set up. They are way too casual about it all....I wish that could change.....
Love,
Madhavi
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