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Hb Levels

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pleasance:
 hi,  :hithere
my daughter's age is 7  and a Thal Major was prescribed Asunra 800 gms as per her body weight that is 20 kgs. As her previous reports showed her ferritin levels are quite high that is 5,500 And as I had a word with you before so accordingly have got her S. creatinine, urine routine and S. ferritin tests  SGOT and SGPT  done at DR LAL Path Lab and the test results were as follows: -

CREATNINE SERUM                                  0.29   mg/dL
SGOT                                                           55.00   U/L
SGPT                                                            53.00   U/L
FERRITIN                                                     4792.50   ng/mL
Protein total random urine                     5.30        mg/dL

So I thought that I should consult that is everything going fine, I know results cant be very good but yes I do need your opinion as if any changes are needed or any thing that is to be looked upon .



would eagerly wait for ur replies :smiley  :pray

Andy Battaglia:
Hi Pleasance,

I'm glad to see some progress with ferritin level, even if only a small decrease. The SGPT and SGOT are both in a good range, so no worries there. The serum creatinine seems quite low, which makes me wonder about the accuracy of the test. But it's not high, so that's not a concern either. The urine protein level is also normal.

My reaction is you are going in the right direction and your child is tolerating Asunra well. She is on the right dose, so let time and Asunra do their work and see how things look in a few months. Regular chelation compliance is the key. She will do well as long as chelation is daily. Once her ferritin comes down to a safer range, the Asunra dose may be revised, but for now, keep things as is.

pleasance:
thanks andy for ur continous suggestions as i really wait for them and also i always have that feeling that yes i am not alone but u all are there for me if i need your opinion any time .thaks a ton ..........................and as far as serum creatnine is concerned do u want me to repeat the test and send u the report .......................i can do that for u

Andy Battaglia:
Pleasance,

These tests will be routinely done, so please do continue to post the results. Serum creatinine and liver function tests are required on a regular basis when using Exjade or any of the chelators that contain the same drug (Deferasirox).

By the way, your child is on a high dose of Asunra, so we should expect to see substantial progress on the ferritin level over the next six months. (I'm assuming the dose is 800 mg, not grams).

Dori:

--- Quote from: Laura on July 30, 2010, 11:59:26 AM ---Hei Dore!

I'm still in Barcelona. I like your shakira quote. Je je.

I'm going to her concert in Barcelona in November. By the way, by that time i'll have my own flat so you can come if you want to stay in Catalonia (region without bullfighting at last!) for some days,

Have a nice summer!!!

I'll be waiting for your e-mail.

Yours,

Laura.

--- End quote ---

No worries, I will delete this message when i finally did what I said. I will send your email monday night. isn't the concert sold out yet? Last time i went to concerts in Netherlands (1) and Germany (2). My wish is to attend one in Spain to feel it like Espagne......
Tomorrow, or later today, I will do blood work. Based on that I will make a decision. I have still no idea how many bags are planned for friday. i am still confused on what results I had to stop Exjade.

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