Discussion Forums > Thalassemia Major
life with thalassemia
questions:
Would anyone out there be willing to contact me to discuss what life with a child with thalassemia major is like? Thanks!
ankita:
pls tell what u exactly want to know
Madhavi:
yes,I agree with Ankita....what would you like to know...do you have a child who is diagnosed as thalassemia major or are you pregnant with one?
Everyone is here to help you however they can....
questions:
My husband and I both carry the thalassemia trait and we are planning for our future. I would like to know anything you are willing to share. What is it like to care for a sick child or live with thalassemia? what are the hardships, what are the rewards? Would you do it all over again? If it is easier to speak privately I can send a private message. Thanks!
nice friend:
Question,
in my view ... life with thalassemia isn't an easy life .. its hard to live with it and thalassemia doesn't provide any benefit or ease in life .. its just an extra heavy bag on the back .... its more likely a headachhe and burden .... thalassemia = more issues , more care to live healthy and to stay heathy, more expenses , more hard work to stay secure financialy ... its not the one bag of blood but 24/7 desferal treatment like back breaking things as well .... its not suumthing for sometime its a life time headache for both parents and thalassemic child.....
its just my opinion nothing more than that .. sorry in-advance if i hurt hte feeling of someone out there .......
Andy you'll b welcomed to edit this post if you think that necessory .... wat do u say abt wat i wrote above ?? ?...
Umair
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