Discussion Forums > Thalassemia Major
life with thalassemia
zahra:
--- Quote from: questions on September 17, 2010, 02:32:13 PM ---My husband and I both carry the thalassemia trait and we are planning for our future. I would like to know anything you are willing to share. What is it like to care for a sick child or live with thalassemia? what are the hardships, what are the rewards? Would you do it all over again? If it is easier to speak privately I can send a private message. Thanks!
--- End quote ---
I am wondering why PGD isnt recommended to such parents before a thal child is born like it is afterwards to try to get another non thal child for bone marrow matching???? :huh
Zahra
Andy Battaglia:
There is an article about the current state of BMT in a post at http://www.thalassemiapatientsandfriends.com/index.php/topic,3910.msg39215.html#msg39215 HLA-matched sibling bone marrow transplantation for B-thalassemia major.
There is also a discussion on Facebook between myself and Dr Arthur Bank about this topic.
Interesting Discussion on Facebook about "France sees first 'saviour sibling'" http://www.thalassemiapatientsandfriends.com/index.php/topic,3889.msg39040.html#msg39040
The Facebook link is http://www.facebook.com/permalink.php?story_fbid=124764174263936&id=78504283219
Many of the issues about BMT are discussed in these articles and posts.
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