Discussion Forums > Thalassemia Major
travel with thalassemia mayor
troll205:
Hello everyone, I'm 33 years old, live in Padova in Italy, weighing 48 kg, 151 cm high, do 2 bags of 300 grams of red blood cells filtered every 20 days.
I did Desferal up to 17 years later Ferriprox up to 30 and now I take 3 tablets of 500mg of Exjade.
values for iron are fine (always less than 2000)
I am also taking 1 tablet of 500mg of resveratrol
I only found this site today.
my compliments! great job!
I searched news thalassemia in the world because I'm about to embark on a trip to Europe a year!
(France, Spain, Portugal, Holland, Denmark, Germany, Norway, England, Ireland)
I try!
Has anyone experienced long trips?
I will try to find hospitals for transfusions in most of Europe!
I'm tired of having to do rentals for short periods ... @$#%!
I hope not to find problems with the payment of therapies ... I'm lucky ... in Italy therapies are completely free!
I ask your help in understanding how treatments are paid to you who live in other states and to understand what are the best hospitals to turn.
Obviously if you plan to come to Italy please contact me and I will help you very very happy!
sorry for my bad English ... I use google to translate;-)
Gian
love and prayers:
hi!
welcome to the site!
i've always wondered how long trips would work out, i'm sure you'll get wonderful advice from the members of this group- i know i always do!
i hope you have a wonderful time and if you could please contact the places where you plan on getting tranfusions, get the required details and inform them of your coming. oh and you probably need to keep your meds prescription along with you.
have a great time!
troll205:
the real problem is not finding hospitals for transfusions but understand if I have to pay personally.
i'm lucky because in Italy a thalassemic patient does not pay transfusions and chelation drug, but the offices of health are not well informed about how it works abroad.
once again in this corrupt world the quality of life is tied to money. :mad
Andy Battaglia:
Doesn't the EU provide medical care in any member nations? I thought that if you traveled within the EU countries, that your medical costs would be covered.
zedzded:
I'm sure Andy is right, all EU countries have an agreement to provide healthcare for their citizens. In the UK you can apply for a health card to use whilst travelling in the EU which will entitle you to health care in an EU country. I think the difficult thing will be trying to forward plan and get agreement from the hospitals in advance. I have never attempted this but if it were me I would start with my hospital doctor, plan your trip in advance knowing which countries you will be staying in and for how long. Try and see if your doctor can refer you to a hospital in each country and have him copy your medical files and agree a transfusion and treatment plan with each of your temporary doctors. I honestly think the hardest thing will be trying to get these hospitals to agree to treat you temporarily, but I'm sure yor doctor will be able to arrange this much easier than you.. In Italy do you usually buy private travel insurance when going abroad? You may have to do this to cover any non-thal related health issues you may encounter.
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