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travel with thalassemia mayor

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zedzded:
Also is there an Italian thalassaemia society/charity?  You may be able to get more helpful advice from them regarding Italians travelling throughout Europe.  I'm sure that they will have had members who have travelled before and may be able to help.  You could also try and find any similar thalassaemia societies in each of the countries you intend to travel to and ask their advice.  The UK thalassaemia society are a very helpful charity if you were planning a stay in the uk.

troll205:
it is not difficult to agree with the hospitals of the various states for transfusions.
is very difficult to understand if I have to pay the transfusion abroad.
The European community is not yet true one state.
each state has different domestic laws regarding payment of costs for treatment abroad.
every European country must provide medical care but the payment varies from state to state.
an Italian thalassemic in Italy does not pay anything for the treatment of thalassemia but for trafusions abroad will come as a citizen of the place.

for example: if a Luxembourgthalassemic  in his country pays transfusions, an Italian thalassemic in Luxembourg will pay them.

request information from the offices of the Italian health system is terrible:
I was told to contact the embassies and consulates abroad.
consulates and embassies abroad do not know anything about health and they told me to ask the foreign offices of health.
foreign offices of health told me that I care but do not know how my state I will pay for treatment abroad.

Last year I had a transfusion in Switzerland:
After one month I only paid 90 Swiss francs, but the bill was paid 700 Swiss francs from the Italian state

I hope that the European thalassemia in their country do not pay for trasusioni so I should be treated equally

zedzded:
I thought that if you had free healthcare in your own country you are entitled to free healthcare in any European country and that your own country would pay the bill if required, like your example of your time in Switzerland.  I have a feeling this is going to prove very difficult to organise.  I would definately try and find any thal groups from the countries you intend to visit and ask their advice.

zedzded:
My husband just pointed out that swizterland isn't an EU country so apologies that example doesn't work ;)

ASTRID:
Hi,

i am not really sure how it works, but i can suggest to get in touch with the Whittington Hospital in London for your transfusions when you are in England. they have one of the best thalassemia centre in Europe/world.  You can get in touch with the UKTS (UK thalassaemia Association) Elein the Secretary is very helpful and i am sure she will be able to help you.

for Germany i haven´t had blood transfusion here yet but they do accept the European health insurance card and you only have to pay 10 euro.

Buona Fortuna

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