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Mom of beta Thal major baby girl

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Gurkiran:
Hello Everyone!
My daughter ( 7 week old) has beta Thal major. I have been using this site for more info and to know aout the quality of life for these patients. Somewhere in the posts I read that transfusion interval for one of the member's son was increased from 2 weeks to 5 weeks by taking homeopathic medicine. Can they please tell us the name/details of that doctor?
My daughter is just being monitored for Hb right now. Oakland CH say they will monitor her and start transfusion when Hb falls below 7.
Also, I wanted to thank everyone on this site for the great work they are doing for parents and patients like us who need support at this time of their lives.
thanks

Bostonian_04:
welcome to Thalpal Gurkiran. Since you are going to oakland, you are at the right place. Your child will grow and thrive and will get all the treatment she needs. so, do not worry. Just enjoy her and treasure all the moment. The time passes very quickly.

Pratik:

--- Quote from: Bostonian_04 on December 20, 2012, 09:35:29 PM ---welcome to Thalpal Gurkiran. Since you are going to oakland, you are at the right place. Your child will grow and thrive and will get all the treatment she needs. so, do not worry. Just enjoy her and treasure all the moment. The time passes very quickly.

--- End quote ---
Exactly.

I stopped crying during transfusion when I was hardly two and half or three. I quickly adapted it as my routine and part of my life. Instead I used to enjoy them because I used to eat all my favorite food that day during transfusion. :P

I don't know how fast I grew.

Don't worry, the path is easy and with the modern treatment that is available today and also the trials undergoing to eliminate thal major and curing it is not very far. It's only a matter of time till someone breaks out through success.

Thal majors are now living in their 50's and 60's, considering they were born in the era where the word chelator was hardly heard. Then you can expect a lot and better life expectancy with today's treatment and drugs.

Just enjoy your child. I don't even remember I've thal major until my transfusion day comes which also hardly takes 5-6 hours and that's it. :)

-P.

Gurkiran:
Thanks so much Pratik and Bostonian. Your encouraging words mean a lot.
Right now, there are good moments and bad moments. When I read something positive like this, I feel we can conquer all but then sometimes, I feel for the pain/ discomfort that my little one will have to go through.

I just want her to lead a happy and normal life. And our family is committed to providing her that. :)
We are going to be seen at Oakland early next month. Hopefully, her Hb hasn't dropped much.

GURKIRAN

aabha:
Prateek........I salute ur positive attitude.....it is an inspiration to others
good luck

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