Discussion Forums > Thalassemia Major

Transfusing BabyI tomm. A bit worried

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Princess'M':
Very happy to hear about BabyI's 1st transfusion going smoothly and momma being so brave :) thanks for the details so we know what to expect when we cross that bridge.

PrincessM's Mama

MikeD:
Thank you for sharing. We are sooo worried about beginning transfusions so early in life and how the process will work for an 8 month old.  I cant even imagine him sitting still for more than 5 minutes.  He is soooo active.  No pacifier here Im sure a bottle will help for a bit but.....  Thanks to everyone on this board for all the support they give.

Sooooooo glad Baby I's first trasfusion went well.  Warm wishes!

Sharmin:
I am so glad that BabyI's transfusion went well!
You went in with a great attitude - BabyI I very lucky.
Just know that in the early years there may be some tough starts
(but maybe it will always be easy).  Just remember, if things derail you can
recompose yourself and the rest of the day will be good.
Never let one or two bad moments rule the entire day. 

So proud of you and BabyI!!

BabyI:
Thank you everyone for the kind words. It does get a big getting used to and a lot of positive thinking. Even though I never liked pacifiers, I do feel it can make a huge difference when the time comes. Else she would have been crying and I wouldn't have been able to console her. Just wanted to mention that incase it helps anyone else. It's so strange getting to this point. I imagined it happening later on when she is older. I think I was a bit in denial, a bit lost as to whether it was truly necessary and a bit loss as to whether the symptoms she was exhibiting were from her hg count or just normal baby behavior. I guess when I look back, the symptoms were there but I was trying to pretend they weren't and that it was too soon. Even though we know she has this and transfusions are in her future, you still want to delay it thinking its not really that necessary and shell be fine without it (denial ofcourse). Some of you may feel the same. I think I called my doctors too many times before the transfusion just to make sure it was necessary and I was doing the right thing. But I later realized that I may be hurting her development and that was enough for me to move forward. It's tough but it's for the best. I pray it's easy for all. It's life. Things happen for a reason and the good that comes out of it we may not understand but there is good in it. One day we will see that.

BabyI:
It's been four weeks now since the transfusion. Problem is how do I know when to transfuse again??? Her hemaglobin was 10 at two weeks after transfusion. But I notice she is increasingly cranky at around 3 weeks. But I'm not sure if its baby stuff or thal related. Now at 4 weeks she is increasing the crankiness and today hardly slept. I think doctor should have checked hemaglobin at 3 week as well. I am a bit confused. Are we suppose to go by hemaglobin numbers only to transfuse next? I mean I don't know if she is teething, having a bad day or needs a transfusion.  It's so hard trying to figure it out. And aren't we suppose to transfuse BEFORE she reaches the crankiness stage??? I'm a bit lost. Please advise. Thanks!

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