Discussion Forums > Thalassemia Major

Pain on lower back

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fifififi:
Dear fellow thaller, i've been experiencing pain in my lower back since few years ago. Is it a normal condition for us thaller or what? The pain is like spreading but only on my lower back, i think its my bone.. What should i do?

Pratik:
Hi fifi,

First of all, what chelator are you using? L1/Defriprone/Kelfar is known for causing backpain, I too suffered sometimes in past when I was taking it.

Next, have you got your Vitamin D and calcium levels checked? Low Vitamin D levels often results in mild to severe pain in back/spine and legs, also causing Osteoporosis. I'm an Osteoporosis sufferer, in 2009 I was also hit with low Vitamin D levels and thereby causing Osteoporosis. However, today I'm better but still struggling to gain my lost strength and cope up other issues.

So I'd advise you to get your Vitamin D/D3 levels as well as serum calcium checked. Depending on your results, if Vitamin D maybe very low, you might be prescribed a small injection, which'd easily raise your D levels back to normal. Also, you're required to take Vitamin D daily, and go or stand into Sunlight, as it's very good and natural source of Vitamin D, if available in your country (for example, you might be living in a snowy country and thereby unable to get most of it from the sun).

-P.

fifififi:
Thank you for the reply, Pratik.. I've been using deferiprone as my chelator.. I didnt know that it might be the cause of my low back pain. And about vitamin D, i never checked mine, neither consume it.. My doctor just prescribed me chelator, folic acid, and vitamin E.. Well, maybe bcos i never complain of my back pain i think..

Pratik:

--- Quote from: fifififi on January 22, 2013, 05:19:15 PM ---Thank you for the reply, Pratik.. I've been using deferiprone as my chelator.. I didnt know that it might be the cause of my low back pain. And about vitamin D, i never checked mine, neither consume it.. My doctor just prescribed me chelator, folic acid, and vitamin E.. Well, maybe bcos i never complain of my back pain i think..

--- End quote ---
Oh, then Defriprone might be the possible cause. Just to rule out the cause, try to stop taking defriprone for at least 2 days and see if you find any relief. If you do, it might be worthwhile to switch to some other chelator like Exjade/Defrasirox.

Also, yes, get your Vitamin D levels checked this time.

And add B-complex to your regime along with Vitamin E and folic acid as it helps you to maintain overall fitness and fight against fatigue/tiredness.

-P.

fifififi:
Okay,, thank you for the explanation.. I appreciate it so much.. I'll go to my doctor and consult this in my next appointment.. :)

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