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Toddler's First Transfusion

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Princess'M':
Hi all! Just wanted to check in... thank you guys for all the support! It's been one week since PrincessM's transfusion. Everything went well for being the first time.

They have ultrasound to guide the IV. They blew the first vein but got the second one. She was really upset [naturally], but it was also naptime so she fell asleep. The nurses had taped up the IV so I just pulled her sleeve over it and when she woke up she didn't even realize it was in. By the time they started blood she was watching her shows on the IPad. I had already taken her to the playroom before and after they started the blood we went back. She did great overall and actually the thing that annoyed her the most was the blood pressure readings. At the end of the day after they removed the IV they had to re-immunize her for hepatitis, at which point she just lost her patience. We'd been there for over 8 hours at that point and I can understand her frustration. As soon as we got out of there she was fine.

The nurses and everyone were so great! Incredibly professional and caring. I feel so blessed to have this team. M is doing good. She is sleeping more soundly, and the color in her hands and feet is PINK!!!! Her eyes are less yellow and she is less moody too.

Anyhow, thanks again for the great suggestions and all of you were right on the money about special treats  :wink We bribed with french fries and a chocolate milkshake this time  :biggrin

Emby:
Well done you...and well done Princess M!
Bet the treat was really for you... :wink

Emby

Sharmin:
Princess 'M'

I am so happy to hear that you did well with your first experience.  That is so great!  In the beginning your experiences may vary - some days may be a little tougher than others but overall it's really not that bad.  Seeing them all pink and energetic is truly worth it.  You will notice her lips and the inside of her mouth is more pink as well. 

I can tell when Little A's needs a transfusion by looking in his mouth - if his lips and tongue are pale his hemoglobin is low and if his lips and tongue are pink his hemoglobin is good. 

Super proud of how well you did!   :hugfriend :hugfriend

Sharmin

Princess'M':
Thank you guys! My girl is finally attempting to walk on a regular basis! She is showing wonderful physical progress... Happiest feeling to see her trying! I know she feels lonely when others her age are running and climbing and she can't. Hope that day comes soon that she will join them.

Princess'M':
Her hematologist has decided to change her from a 3 week to a 4 week transfusion schedule because of her retaining a decent pre-HB at 3 weeks. Anyone else experienced the same with their child? I trust his judgement ... Just wondering if this is something to expect... The varying time lengths between transfusions as M gets older?

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