Discussion Forums > Working Towards a Cure
Bluebird Bio Releases Data on Current Gene Therapy Trials
EugenioLaMesa:
--- Quote from: Andy on June 18, 2014, 11:45:51 PM ---Trials are currently slated for Australia and Thailand, also. I keep reminding them that India has a huge amount of thal majors.
--- End quote ---
About 130,000 thal majors in India, with 10,000 new born every year.
Rajiv:
I think that cure thalassemia should put all required efforts to make available gene therapy treatment in India. They do BMT across world and in Italy and in India, therefore,
to make the treatment more safe and GVHD and infection free and also to make treatment more successful they can opt for gene therapy. They don't
have to find a donor for this treatment. Hope with the commencing of gene therapy treatment, cure thalassemia will work in this field.
thanks and best regards
EugenioLaMesa:
--- Quote from: Rajiv on June 20, 2014, 04:07:14 PM ---I think that cure thalassemia should put all required efforts to make available gene therapy treatment in India. They do BMT across world and in Italy and in India, therefore,
to make the treatment more safe and GVHD and infection free and also to make treatment more successful they can opt for gene therapy. They don't
have to find a donor for this treatment. Hope with the commencing of gene therapy treatment, cure thalassemia will work in this field.
thanks and best regards
--- End quote ---
We do BMT now because it exists since 30 years and there is lot of data and experience available. But we also know that BMT is only for young children, for adults it is not an option, the risk is too high.
Regarding Gene Therapy we are monitoring it, as you know it is still a trial and if and when it will be available we will carefully evaluate its results, side effects, cost, etc to see if we can make it available in India. It will probably takes some/many years.
Andy Battaglia:
Canadian family,
I have had the same thoughts about the stock price. I saw it coming. When Bluebird finally contacted me, I knew something was up. I considered buying the stock, but felt it could compromise my objectivity, so I decided against it, in spite of knowing it was going to explode. I could have made a bundle too, at a time when I could really use the money. I just couldn't do it. I have to remain objective if I am going to serve thals. It's not the first sacrifice I've made and won't be the last. I have to stay true to myself and to those I hope to help.
catchR:
Andy, Truly appreciate your self-less efforts for the good and betterment for all the thals across the word!!
Take a Bow :thankyou
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