Discussion Forums > Thalassemia Major
Hardik
hardik:
--- Quote from: hardik on August 30, 2015, 01:10:55 PM ---Hello Andy
Plz guide me
I had bought IP6 from puritan pride....How and When to take it.?? Before and After taking Instructions...and which things are to be kept in mind with its ongoing,i mean, test which should be considered Before and After ....and all other imp info
Presently the baby(19 months old) has ferritan level 1720..,transfused after 25 days....daily diet includes normal food in addition with wheatgrass powder(1-2 gm) and green tea (1/2 tea pouch) and Desirox 250(1 tab on empty stomach)
his stool sometimes show black color...otherwise normal ...but passes all day long ( many times )in little amount .I try to keep him well hydrated but why is it happening ....I dont know....
His energy level is good enough now but his increased ferritin makes me frightened all time..
Plz give details
Thanks
Neha
--- End quote ---
Thank you Andy
Plz also recoomand when to give IP6 as I m giving Desirox in morning on empty stomach....and wheat grass in evening mixing with juice....how 2 things can be given on empty stomach.........
and somewhere in the forum it is mention that IP6 should be given with zinc and insonitol....
SUPPLEMENTS
Is IP6 and insonitol not a same thing.... :huh
I m a little bit confused.... ??? ???
Neha
hardik:
I have a question in my mind.......does IP6 cause loose motion .....I m giving my 19 months baby IP6(bought from puritan pride) in the morning empty stomach with wheatgrass dissolved in water...from the last 1 month but now his waste has a very foul smell with light yellow colour.....is it because of IP6...???.....or an infection from something else...
Plz also guide about supplements to be given in addition to IP6.....I had read somewhere in the forum that IP6 should be given with zinc and insonitole...
Is IP6 and insonitol not a same thing.....?????
Currently he is on vit D,calcium and folic acid and green tea
hardik:
plz reply....
Andy Battaglia:
IP6 may have a mild laxative effect, which is often welcomed, as iron causes constipation. It may be that you are observing iron being removed that you see in the yellowish tint.
Inositol and IP6 are not the same, but adding inositol can make IP6 more effective, but that will also add to the laxative properties.
hardik:
Thanks for ur reply Andy.....
Its always g8 to hear from you and when its come about iron chelation ......its feel like heaven.....thank u ....hope so ....next ferritan also shows us same thing....
Again i m disturbing all of you....but this forum(performing excellently) is the only hope to gain some knowledge about thal and all so plz if u or anyone in the forum could tell following things :----
1)As baby Hardik is on desirox (1 tab 250mg) and IP6+wheatgrass ....so is there any need to get ferritan to be done early....,he had his last ferritan in august only which cames out be 1515 from 1 lab and 1900 from 2nd lab
2)Can IP6+ wheatgrass be given with readymade grapes fruit juice or orange juice as they contain high amount of inositol because if i prefer capsules then it may be possible that baby Hardik will have more loose bowel movements all day long which can make him feel weak.
3)drops of Zinc to be given......,on daily basis
4)Other supplements required to be given on necessarily basis. At present he is on vit D(1 ml ) , Calcium(2 tsp) and folic acid (2.5mg) daily + Green Tea(1/2 tea bag)
5)I had heard and read about THALLIDOMIDE(+wheatgrass+desirox) pros and cons.....and one of my known who is Thal Minor( but having BT on regular basis due to growing needs) is taking it after consulting a doc.....and thus having no BTs from last 4 months.............., Can u plz throw some light on it.
Plz reply soon as one of my friend is coming from USA so if capsules are preferable ......,I can order them from puritan pride(same brand as of IP6) and can save shipping charges which means same amount as of original thing price
Thank u
Neha
PLz reply soon
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