Discussion Forums > Thalassemia Major

Luspatercept ??

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Katerina_Mall:
I would like more information about this drug please

what is it about? does this mean no more transfussions?

would we be doing this on our own like we do our desferal or would we have to go to hospital and have this done?

im excited but at the same time comfused 

Andy Battaglia:
Hi Katerina,

Luspatercept is in trials. The early trial had very good results. All patients had a decrease in transfusion requirement of at least 60%. The trial was short, so we won't know more about how well it works over longer periods of time until the next phase of trials is completed.  It is administered by IV once every three weeks.

There are some previous posts about this at http://www.thalassemiapatientsandfriends.com/index.php/topic,5303.msg49810.html#msg49810 and http://www.thalassemiapatientsandfriends.com/index.php/topic,5308.0/highlight,luspatercept.html

Katerina_Mall:
ty Andy

kaleem:
I read on various websites that some companies were marketing authorization for Luspatercept in Europe.. Any one knows any further update when this medicine will be available for sale ..

Andy Battaglia:
It's also on the road to approval in the US. The drug was fast tracked, so the approval process should be expedited.

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