Discussion Forums > Thalassemia Major

Luspatercept ??

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kaleem:
Thanks Andy for the information, hopefully will soon get approved in US.. I have not found any info if the medicine is available for patients in Europe so far.. the only news was related to its marketing authorization by a company.. 

whiterose:
Hi,
Do we have any update on Rebozyl/Luspatercept ? When can we get it ?
I'm from india. I dont find it anywhere(online/offline).

Andy Battaglia:
There is a video of of recent webinar discussing Luspatercept that can be seen at https://www.youtube.com/watch?v=u34iA1z-2pY&ab_channel=ThalassemicsIndia

I assume that it is coming to India and we can hope that it will be made affordable to patients.

whiterose:
Hello Everyone,

I think ROJUZDA is being used in Indian community . Requesting some reviews whoever is using it. What are the side effects, transfusion frequency after injections, cost ,availability , precautions ?

Thanks

Andy Battaglia:
This is the same drug as Luspatercept, which has been used with some success by many US patients. It does not suit everyone or work for everyone, but it is definitely worth trying to see if it can help individual patients maintain a higher Hb level and reduce their transfusion needs.

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