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Natural "Cures" for Thalassemia

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Mukta:
Lokhi maa ,

As our son is very small Dr Raman has only advised as to start with Wheat Grass powder for his daily dosage. We have started him on this.He has called us after 4 months & we are not sure if he would start medicines so soon.

hardik : Thanks for all the info. This is very useful information to have and share.

Andy Battaglia:
Dr Ramanan is a pioneer in a method no one else has tried and until Dr Ramanan publishes results, I don't expect to see many doctors try his methods.

There is no point in being skeptical about the results Dr Ramanan is having with many patients. If other doctors don't try to duplicate his work, that is on them, not on Dr R. The results are true. We do need to continue to request Dr Ramanan to publish results. I would love to see him invited to the next TIF conference and Dr R has expressed interest in presenting, but will the international community invite a doctor that many see as a rebel?

Nomad:
Andy, hate to say it but as far as I know T.I.F. I don't think so. They have their own "standards ". For example, although they mentioned the oral combined therapy in their guideline they absolutely seem not to be happy hearing about me using it... As for vitamins or antioxidants... don't ask don't tell. The only comment I got was to wach out not to run out of oxidants.

DrRajpal:

--- Quote from: Andy on December 16, 2006, 05:56:02 AM ---We've often heard claims that there are healers and clinics that make the claim that they can cure thalassemia. These "cures" are usually found in the form of herbal mixtures, homeopathic remedies or through the use of some supplements. We most commonly hear these claims from countries such as Pakistan and India, where medical care is often lacking and people are desperate for anything that might help battle thal. Unfortunately, this leads to a proliferation of frauds, fakes and charlatans. There are many true herbalists and homeopaths, but there are also many fakes and it is left to the patients to determine who knows their craft and who are frauds. When we choose medical care we normally hope to have some information about the doctors, etc. or the clinics or hospitals where they will be treated. When we see these claims online there is often no easy way to check on the reliability of those offering help. When looking for a doctor we might ask a friend or relative to refer you to someone but how do we find out about these "healers" who advertise their businesses on the internet? This seems especially difficult because these healers never seem to be able to present patients who have been cured of anything. They often use privacy issues as an excuse, but I have yet to meet any thal who wouldn't be shouting it from the rooftops if he or she had been cured. Wouldn't we be hearing about this in the news and even in the online forums?

Over the past few years I have heard from several different individuals and groups that claimed they could cure thal. I have yet to have any of them present a single cured patient. I don't doubt that some of these places offer something that may improve the quality of life and maybe even raise fetal hemoglobin levels some, but I also feel that if any of them were curing thals we would have heard about it. In fact, these people would be rolling in money if they had such a cure in their hands.

I would like to ask anyone who has any experience, positive or negative with healers who claim to be able to help or even cure thalassemia, to post and tell us their experiences. Has anyone found anything that improves the quality of their life  or raised their hemoglobin levels or have been able to reduce or totally eliminate transfusions. Does anyone know anything about these clinics we've heard about in posts here recently or any other clinics where they have made claims about treating thal?

There do appear to be some food products and supplements that can raise Hb levels somewhat, wheatgrass being the most known example, and there may be many others we have yet to identify. I'd like to encourage people to post any experience they have had related to this, whether using some supplement or natural medicine or being treated at any of these natural clinics. Anything you can tell us may be of help to many others. This group has so much potential as long as people are willing to share their own experiences. Let's do that!


[/quoteThank sir for recommendation to Mr umar I hv suggested him few medicines And told even can send on much less price than online
Secondly am happy to share that my first case I have mansioned many times He cam to 110ml of BTW from 300ml And duration is increased upto 40days from 20-25
--- End quote ---

mommycarrie:
Hello, I am new here so I am not an expert as compared to most of you in this forum.

My family and I have recently transferred to China. My husband and I are both teachers and we were fortunate to land a job with benefits including free housing, free tuition, and medical assistance.

My son is 4yo. He has Beta Thalassemia with HgE. Back home, in the Philippines, his hematologist finds him "generally healthy" in spite of having blood levels ranging from 80-100. We make sure he never gets sick. We bring him to the doctor even with a mild cold to prevent him from having severe infection.

3 weeks ago, my son was confined due to pneumonia. He was misdiagnosed (by 4 doctors) which made his mild cold turn to something severe. If we did not insist for a chest xray, we won't find out that he already has pneumonia. As expected, his hemoglobin levels decreased (56) and he was required to have transfusions (for the 1st time). He was only give half a unit of blood because the doctors just wanted to increase his blood levels a bit but not necessarily up to 110. Because of the incident, we were forced to look for a good hematologist. Good thing one of our parents in school knows a good friend who is the head hematologist in a Children's hospital.

I found out today that my son's thal is different. Alpha was also found in his blood. This results to lessening of the severity of his thalassemia. His doctor recommended a Chinese Medicine (sodium ferrulate- extracted from 2 kinds of ginseng) to help maintain blood levels and prevent bursting of RBCs in addition to his other medicine which is folic acid. We were advised to monitor our son's hemoglobin every 3 mos and for now he doesn't need further blood transfusions.

It's my 1st time to hear about sodium ferrulate. I will let you know how it goes. I'm planning to mix it with wheat grass. I know that herbal meds take too long to effect so I am starting it now for my son. We have a lot of those supplements back home. Hopefully, as my son grows old, he will never need transfusions.

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