« previous next »
Pages: 1   Go Down

AM JUST JOINING THE SITE

  • 3 Replies
  • 5269 Views
*

Offline alfreij

  • *
  • 1
AM JUST JOINING THE SITE
« on: January 04, 2009, 11:18:16 AM »
 dERA ALL AM JUST NEW PERSON WHO IS AM AS AFATHER OFA CHILD WHO HE HAVE (PURE RED CELL APLASIA)- BLACK FAN DIAMOND  - THERE IS ANY BODY KNOW ANY THING A BOUT THIS KIND OF SICKNESS. ALSO AM AS FRIND OF KHALIFA WHO IS ADVISE ME TO JOIN THIS SITE ..
                                               

                                                                  MOHAMMAD ALI ALFREIJ
                                                                  STATE OF KUWAIT
Logged
*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: AM JUST JOINING THE SITE
« Reply #1 on: January 04, 2009, 11:42:29 AM »
Hi Al-Freij ,
 :welcome to the Family , its nice to have you here , hope to hear more from you , please keep in-touch with us ... and keep posting ...

Best Regards
Take Care
Umair
Logged
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: AM JUST JOINING THE SITE
« Reply #2 on: January 04, 2009, 12:27:20 PM »
Hello alfreij and welcome to the site.

This is the link about facts concerning the black fan diamond
http://rarediseases.about.com/cs/blackfandiamond/a/072002.htm

Tell us more about your son, are you giving him Corticosteroids or do you depend on blood transfusion??


manal
Logged
*

Offline Dori

  • *****
  • 1443
Re: AM JUST JOINING THE SITE
« Reply #3 on: January 04, 2009, 01:47:49 PM »
Hey,

I dont have black fan diamond, but I know what it is. I got a rare anemia called pyruvate kinase deficiency.
Can you tell us something about your son's treatment. I know a few Dutch persons with bfd. If you like, I can ask them to contact you. I think they would like to tell you something about their treatment. (I am not sure of they speak all English, but I will ask)


p.s. This a great site! I have learn a lot of new things since I join them this autumn.
« Last Edit: April 19, 2011, 11:15:59 PM by Dori »
Logged
Pages: 1   Go Up
« previous next »
 

SMF spam blocked by CleanTalk