Hello Everyone! I am Back!

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Offline Manal

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  • Gender: Female
  • mother of thal intermedia child
Re: Hello Everyone! I am Back!
« Reply #15 on: December 09, 2010, 01:01:17 AM »
Thanks Andy

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Offline Dori

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Re: Hello Everyone! I am Back!
« Reply #16 on: December 11, 2010, 09:22:17 AM »
Wow, welcome back. But you had have your son's cord blood as a transplant? Wasn't that hard for your body?

Dori
a newbie with severe Pyruvate kinase deficiency

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Offline alnahrahmea

  • Thal Mom from the Philippines
  • **
  • 93
  • Gender: Female
  • This is my God's gift and warrior in us. :)
    • Princess SHINE's KINGDOM
Re: Hello Everyone! I am Back!
« Reply #17 on: December 22, 2010, 02:46:28 PM »
Yes Manal that is what they used.

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Lei

Did you make a transplant using your son's cord??


manal
Lei  :heartpink

Re: Hello Everyone! I am Back!
« Reply #18 on: December 22, 2010, 08:21:37 PM »
hi! i just wanted to say that it's so good to know about your transfussion free life and healthy baby!!
if you're doing well then there shouldn't be any reason that you don't live a normal healthy life as any other non thal! if the procedure you did worked out then that gives great hope for others!!!
good luck and best wishesss!!

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Offline Manal

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  • Gender: Female
  • mother of thal intermedia child
Re: Hello Everyone! I am Back!
« Reply #19 on: December 28, 2010, 03:57:09 PM »
Hi Lei,

Congratulations on the procedure and the outcome :biggrin

Could you please explain the details of the transplant. Were you given a chemotherapy??

Usually the blood in the cord blood is too little for an adult body (that is why sometimes more than one cord is used), so was the quantity suffient to you??

Did the doctors comment about the age? usually transplants are done before the age of 15 years

Thanks Lei

manal

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Offline Dori

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Re: Hello Everyone! I am Back!
« Reply #20 on: June 27, 2011, 01:21:05 PM »
Hi Manal, another 40yr old I know is waiting for a call from the donor bank for her upcoming stem cell transplant. I say another as I've got another friend who underwent a transplant. Unfortunately she's very ill and fighting for her life.

Lei, amazing. I am very happy for you <3

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Offline Manal

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  • Gender: Female
  • mother of thal intermedia child
Re: Hello Everyone! I am Back!
« Reply #21 on: July 09, 2011, 09:37:24 AM »
Thanks  Dore for your reply and i am sorry to hear about your friend. Definetly these procedures give better result at young age. Hope your other friend is making the best decision
Manal

 

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