hello everyone

  • 1 Replies
  • 3829 Views
hello everyone
« on: June 28, 2011, 09:35:56 PM »
my name is emy , 4th weeks ago i dunno what im goin to do coz my wee boy who is 3 is not well  then the doctor told me if any of my family have a hsitory og thalassemia -- well i duuno... they check our blood coz my wee boy have alpha thal HB H so definitely my husband n me are carriers.. our blood resul is ; my husband is alpha thal ( aO)
while i have the (a+0...

we want to have another child but we are scared what would happend ...what can of thalssemia he/she is goin to have.....

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: hello everyone
« Reply #1 on: June 29, 2011, 12:12:06 AM »
Hi Emy,

There isn't much recommended for treating HbH disease. Hopefully, he won't need transfusions. Transfusions are usually needed only when the patient carries a non-deletional alpha thal and has worse symptoms. Folic acid is the only universally recognized treatment and your son should start on folic acid drops as soon as possible, He should continue taking folic acid daily for the rest of his life. Folic acid is needed to build red blood cells and is one of the few things you can do to help. You should watch for any relation between foods he eats and him feeling worse. Fava beans are to be avoided, but some people show sensitivity to other beans and legumes, so if there is a sudden drop in Hb level, check what has been eaten. If beans or peanuts have recently been eaten, try removing them from the diet to see if his Hb stays more stable. Chemical fumes should also be avoided. We have a list of drugs and chemicals to avoid with alpha thal at
http://www.thalassemiapatientsandfriends.com/index.php/topic,3410.msg34830.html#msg34830

A healthy diet is highly recommended and establishing good eating habits when he is young can make a real difference in his life. Please resist attempts to correct his Hb with iron. This is a mistake in HbH but commonly made. With his low Hb, it is likely he will absorb too much iron from food, so taking iron supplements should be completely avoided, as to avoid iron overload.

Getting pregnant naturally means taking the chance of another child with HbH. Some people choose this and either live with the result or abort when HbH is diagnosed. PGD and IVF can be used to accurately choose a non-carrier, but it can be a long and costly process.
Andy

All we are saying is give thals a chance.

 

SMF spam blocked by CleanTalk