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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1737 Posts in
172 Topics
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Last post on April 14, 2013, 12:35:34 am
in Re: Thalassemia Internat... by Pratik
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3536 Posts in
367 Topics
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Last post on June 16, 2013, 11:43:56 am
in Re: Hi fellow thalassemi... by Nicole
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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4476 Posts in
385 Topics
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Last post on Today at 12:59:41 pm
in Re: Question for Andy... by Emby
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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2691 Posts in
216 Topics
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Last post on Today at 09:22:16 am
in Re: New Member, please h... by Andy
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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4447 Posts in
612 Topics
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Last post on Today at 09:21:02 am
in Re: Does any one know ab... by Andy
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2590 Posts in
251 Topics
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Last post on May 17, 2013, 03:45:17 pm
in Re: Children get HIV in ... by Andy
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6023 Posts in
421 Topics
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Last post on June 17, 2013, 04:56:57 am
in Re: ASUNRA PRESCRIBED IN... by HANUMANT AASHRIT
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1279 Posts in
97 Topics
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Last post on Yesterday at 09:16:56 am
in Re: cost effective HLA t... by Andy
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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37 Posts in
3 Topics
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Last post on June 12, 2013, 10:19:13 pm
in Re: ferriscan in UAE by WendyW
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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2839 Posts in
271 Topics
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Last post on June 12, 2013, 07:12:53 pm
in Re: Ozone therapy by Andy
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2034 Posts in
145 Topics
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Last post on May 30, 2013, 03:45:16 am
in Making life easy-underst... by Rashmi
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1482 Posts in
155 Topics
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Last post on Yesterday at 03:22:23 am
in Re: wheatgrass side effe... by HANUMANT AASHRIT
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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1809 Posts in
240 Topics
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Last post on April 25, 2013, 08:34:40 am
in Re: thal minor and autis... by Andy
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5513 Posts in
431 Topics
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Last post on May 24, 2013, 08:40:23 am
in Re: When/How do you all ... by Pooja Thadani
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3448 Posts in
654 Topics
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Last post on June 16, 2013, 04:53:16 am
in Re: HAPPY FATHERS DAY by Pratik
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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169 Posts in
63 Topics
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Last post on May 30, 2013, 06:24:15 pm
in Blood Transfusion by Joh... by Andy
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Treatment Centers
Please tell us where you receive your treatment.
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245 Posts in
76 Topics
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Last post on March 13, 2013, 06:50:06 am
in Re: Need a Thal Center i... by foka
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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15 Posts in
8 Topics
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Last post on June 02, 2013, 12:08:41 pm
in Re: Desired doctor/cente... by Andy
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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153 Posts in
34 Topics
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Last post on March 07, 2013, 01:23:55 pm
in Re: Thalassemia Societie... by Hewsauce
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Blood Donor Registration Groups
List your blood donor sign-up group here
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26 Posts in
7 Topics
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Last post on May 20, 2012, 03:02:18 pm
in Re: blood donor has the ... by Pratik
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 pm
in Re: Earliest Reliable Te... by Andy
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