Discussion Forums > Working Towards a Cure
situation changes for me...
Sharmin:
Kabir_love,
You must do what is best for you son - you have entrusted your son's life with Dr. Mathur for this long!
I am sorry to tell you that the blood transfusion, which you are so afraid of is not so bad. Most children who are
transfused (as required) are healthier than your child is right now.
My son will be 10 years old this year - and (thank god) he has NEVER had an enlarged speen or liver. In fact, doctors who don't know of his thalassemia are not able to detect any signs of his thal. These children are happy energetic and capable, because they don't have low hg to struggle with. Have you seen pictures of these beautiful children in the gallery? You don't need Mathur - take care of your son - give him the conventional treatment for now and soon enough there will be easier - more valid forms of treatment - such as Hemaquest - where you don't need to make yourself and your child suffer -hoping that you can attribute some negligeable change in hg to this Rodex business. This is only my opinion - we are on YOUR side Kabir - and on you son's side. Maybe, Andy can give you an opinion as well.
Take care and god bless,
love Sharmin
Zaini:
--- Quote ---My son will be 10 years old this year - and (thank god) he has NEVER had an enlarged speen or liver. In fact, doctors who don't know of his thalassemia are not able to detect any signs of his thal. These children are happy energetic and capable, because they don't have low hg to struggle with. Have you seen pictures of these beautiful children in the gallery? You don't need Mathur - take care of your son - give him the conventional treatment for now and soon enough there will be easier - more valid forms of treatment - such as Hemaquest - where you don't need to make yourself and your child suffer -hoping that you can attribute some negligeable change in hg to this Rodex business. This is only my opinion - we are on YOUR side Kabir - and on you son's side. Maybe, Andy can give you an opinion as well.
--- End quote ---
Vey well said Sharmin,
I am of the same opinion,micky please stop this treatment and start taking care of your kid your self,once you'll transfuse your kid you'll see the difference,he will be energetic and will eat healthy,transfuse him on time and he will grow properly and will be able to enjoy his life to the fullest,plz think about it, i know you are spendinga big amount on dr mathur's treatment,and you said yourself you are not getting what you wanted,BLOOD IS A SOURCE OF LIFE FOR THESE KIDS this is atleast what i think,but when ever my daughter gets a transfusion i see a clear change in her attitude, she is more happy and joyful,she eats well. I am a thal minor and been a victim of low hb my whole life,i know how cranky and tired i feel when my hb is low,my body starts aching,so when i think about a kid with as low hb as 5,i can understand how they muct feel,these are not only words i really can feel it,PLEASE think about it micky, if you were getting benefited from dr mathur's treatment it was alright,but it's beena long time and you haven't seen any results,you can try wheat grass along with the transfusions,may be it will work and you'll have to give your son less transfusions.As Sharmin said about her son, same is the case with my daughter,physicians normally never detect her condition unless i tell them about it,she never had enlarged spleen or liver, Thanx to ALLAH.
ZAINI.
maha:
Hi Micky
Did they say it was ok for you to be the donor for your son. Here they say it is better if the donor is not a close relative. Maybe Andy will come up with an explanation.
Take care
MAHA
kabir_love:
monday goin for 1st bt. my son will cry a lot but. have to do it now...
regs
micky
Smurfette:
I am sorry..why did you wait so long to transfuse your son? :mad
Sorry but reading this article has made me alittle angry..I have no other comment just what I wrote above..
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