Discussion Forums > Working Towards a Cure
situation changes for me...
Andy Battaglia:
I don't think hypertransfusion will be applied unless it is established that excessive hemolysis is taking place. At this point, it is important to take one transfusion and see what happens to the Hb after that and how quickly it drops. The spleen is commonly enlarged in intermedias and is one of the reasons that splenectomy has traditionally been part of the treatment for intermedia.
Because of the lack of consistent medical intervention in this case, I don't think we really know enough to speculate on what course treatment will now take. It is important for Micky to understand that regular medical treatment is necessary and only after talking with a competent doctor, will he be in a position to know what to expect. I realize this is a trying time for Micky and I don't want to alarm him with speculation. We haven't seen his child so we are not in any position to tell him how his child is doing compared to other non-transfusing intermedias. This is why it is essential that a doctor who understands the difference in the approaches to treatment for intermedia and major is involved in his treatment.
Micky, I hope you take notice of the post I made about blood donation from close relatives and that the blood must be irradiated before given to the child. The risk of host vs graft disease is very real and should not be taken. This cannot be overemphasized and lack of facilities to irradiate the blood is why our fellow members have been told not to donate blood for their own children. Also, if you have paid for further treatment from Dr Mathur, please use it as it may have some small positive effect on Hb levels for your son.
kabir_love:
hi. transfusion is done.. very painfull at starting for 3 hrs. then my son forgot and started playing but cant forgett this day ...
please now advice what to do. at the time of bt my son hb was 5.3, and he was given 200ml + about 250ml of blood, doctor told me spleen and liver is enlarge but with regular blood transfuion it wil get normal, and i should take more of bt in 3 week time for this enlarge spleen and liver untiel they get normal. but as what andy says i should rather check this hb level , how it goes down so then should i wait?
otherwise also at that time my son was very active he was eating and playing though he dosnt walk for long time but for 15-20 min he can walk and dance like normal kids at hb level of 6.
now for slpeen as doctor said its 4-5 cms long he touched the stomach and observe this and for lever also , now we plan to go and o the ultrasound of stomach to see the exact of how much is slpeen and liver was enlarged.
so please how much HB SHOULD I MAINTAIN BEFORE GOIN TO BT incase hb is not falling that fast, also we had done the test for TYPE OF THALASSEMIA MUTATION for my kid to know the exact type,i m aware whatever the result comes out so i need your advice on that also.
is there anything to worry about for enlarged slpeen 4-5 cms and liver- 6 cms?? or with regular blood transufion i can relax on this?
regs
micky
maha:
Hi Micky
250ml?????????I am shocked. Micky the amount of blood transfused should be between 12-15ml/kg. Was he monitored for BP, pulse etc... throughout the transfusion.Was his post transfusion hb checked? Hassan weighs 11.6kg and he was given 170ml. When too much blood is transfused at one time it puts a lot of pressure on the heart.
take care
MAHA
kabir_love:
at the time of bt his hb was 5.3, and weight was 9.2 kg. he was not check for bp or other things at the time of blood tranfusion but various test was done before starting it. doctor said the spleen and liver is enlarge and would take 4-5 months to get back to normal
maha:
Hi Micky
I feel he should have been given a max of 150ml this time and probably followed by 150ml again after 3-4weeks instead of giving 250ml at one go. This is what our hema told us . Are you taking him to a thal center.
Take care
Maha
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